In recognition of of National Rare Disease Day we would like to share The Faces of TANGO2 – a rare genetic disorder.
A disease may be rare, but hope should not be.
Veronica, Thea’s Mom, has started a blog sharing her and her family’s TANGO2 journey – click here to go to Notes from a Rare Disease Mom From Veronica: “In 2017, my then 2 year oldRead more
The TANGO2 Research Foundation is excited to announce the funding of its first research award. The Foundation has committed $45,000 over a two-year period to help fund the cost of a Research Assistant dedicated toRead more
A natural history is the single best avenue to study traits of TANGO2 and how these traits progress over time With so little currently known about TANGO2, the collective data in a natural history studyRead more
STUDY ENROLLMENT INFORMATIONFamilies can contact Briana Bruckler at email@example.com for further information. Researchers at Baylor College of Medicine in Houston, Texas are conducting research on TANGO2-related disease. The purpose of this study is to gatherRead more
UPDATE 6/7/2018 – NOW ACCEPTING PATIENTSFamilies can contact Dr. Christina Miyake at firstname.lastname@example.org for further information. We received word at this past Sunday’s TANGO2 Research Foundation board meeting that the Baylor IRB protocol for aRead more