Summer 2020 Newsletter!

We are pleased to share that Rare Disease Connection, a production of Aspect Health and raredisease.com, recently hosted a podcast with friends of our foundation! Sheena Byerly hosted Dr. Seema Lalani, Jayme Gilmore, and LindseyRead more

This month, friends and family of Ryan Morris held a successful fundraiser to honor his journey living with TANGO2 disease. Ryan’s aunts, uncles, cousins and friends rallied together and gathered donations to set up aRead more

FOR IMMEDIATE RELEASE   CONTACT: Ann Geffen, Executive Director PHONE: 407-459-4427 EMAIL: ann.geffen@tango2research.org   CHAN ZUCKERBERG INITIATIVE GRANT ACCELERATES TANGO2 RESEARCH FOUNDATION’S  FUNDING OF CRITICAL RESEARCH AND HIRING OF EXECUTIVE DIRECTOR   MIDDLETOWN, Conn. (AugustRead more

It is with pleasure that we announce the new Executive Director of the Tango2 Research Foundation. Ann Geffen joins us with an extensive and all-encompassing nonprofit background. Geffen came to the Tango2 Research Foundation fromRead more

The TANGO2 Research Foundation is excited to share more details around our first cycle of grant funding that was awarded in April 2020! As expected, there has been a bit of a delay getting actualRead more

FOR IMMEDIATE RELEASE   February 3, 2020  (DOWNLOAD PDF VERSION HERE) MEDIA CONTACT: Kasha Morris 860-841-5222 kasha.morris@tango2research.org TANGO2 Research Foundation Awarded Grant from the Chan Zuckerberg Initiative to Fight Rare Disease Part of $13.5 Million fromRead more

Executive Director Position (** NO LONGER ACCEPTING APPLICATIONS – THANK YOU**)   The TANGO2 Research Foundation is seeking a dynamic and entrepreneurial-minded leader to serve as Executive Director. This is an exciting time to joinRead more

Christmas is the the season to give and give thanks. During the most recent season, there were several initiatives that took place  in Turin to support the work of the TANGO2 Research Foundation! The eventsRead more