Welcome to our new Executive Director

TANGO2 disorder was first described in 2016, and based on estimated carrier frequencies of those pathogenic variants associated with TANGO2 disorder, the vast majority of patients with this disease remain undiagnosed. Unfortunately, rarely is aRead more

On June 26th, our Foundation had a successful virtual event celebrating on TANGO2 community. We celebrated our amazing team captains, participants and donors for surpassing our fundraising goal. We also heard from one of ourRead more

The families of our TANGO2 warriors have been an immense source of support and outreach for their warriors and our cause. Just this week, David Longman organized a POKER FOR TANGO2 fundraising event to honorRead more

We are pleased to announce the transition of leadership for our Fundraising Committee. Our outgoing chair, Kara Dort, has accepted the role of Board Treasurer after successfully leading the fundraising committee and campaign to exceedRead more

This month, the community of East Hampton, Connecticut held two fundraising events to support Team Ryan’s Shine a Light on TANGO2 campaign! The first event was at Po’s Rice and Spice in the historic districtRead more

If you were on our Shine a Light on TANGO2 kickoff event back in February, you met Lindsey and Brad Messerschmidt! Lindsey and Brad are parents to three children diagnosed with TANGO2 disease. They live inRead more

We are happy to highlight Team Oliver’s Awesome Advocates today! Oliver was diagnosed with TANGO2 in 2018 when he was 13. Oliver’s parents had already been searching for an answer to his ataxia, episodes andRead more

This Rare Disease Day, the TANGO2 Research Foundation highlights “Living with a Unicorn” –  a blog by Gloria McDonald, Olivia’s mom. Gloria talks about Olivia, her diagnosis of TANGO2 disease, how their life changed, whatRead more