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RARE DISEASE CONNECTION TANGO2 PODCAST: Everything to know about TANGO2, from the experts

    Home Uncategorized RARE DISEASE CONNECTION TANGO2 PODCAST: Everything to know about TANGO2, from the experts
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    RARE DISEASE CONNECTION TANGO2 PODCAST: Everything to know about TANGO2, from the experts

    By Ann Geffen | Uncategorized | 0 comment | 7 October, 2020 | 0

    We are pleased to share that Rare Disease Connection, a production of Aspect Health and raredisease.com, recently hosted a podcast with friends of our foundation!

    Sheena Byerly hosted Dr. Seema Lalani, Jayme Gilmore, and Lindsey Messerschmidt and featured their expertise and experiences with TANGO2 disease.

    TANGO2 disease has only been described in the last several years, so the information out there is very limited. The goal of this episode is to make it a first-of-its kind resource for the TANGO2 community.

    Listen to the podcast at  https://raredisease.com/tango2

    About Rare Disease Connection:

    Rare Disease Connection, and additional resources on RareDisease.com and YourDNA.com, brings together the people whose expertise can explain what you’re facing. From diagnosis, to prognosis, to treatment options, all the way to questions like “Who do I talk to? Where are the people who’ve been through this before?”. Rare Disease Connection have the answers, direct from the experts and those who’ve faced your disease. From doctors, geneticists, academics, genetic counselors, patient organizations, other patients and their families, all within your reach, they are here to connect you.

    No tags.

    Ann Geffen

    More posts by Ann Geffen

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    Recent Posts

    • Teaming up with Solace Nutrition to help increase the quality of life for those with TANGO2 Disease

      December 1, 2020 | Uncategorized

    • Meet Agathe De Miniac, Author of ‘Tango2’

      November 11, 2020 | Uncategorized

    • RARE DISEASE CONNECTION TANGO2 PODCAST: Everything to know about TANGO2, from the experts

      October 7, 2020 | Uncategorized

    • FRIENDS & FAMILY RALLY FOR RYAN

      September 21, 2020 | Uncategorized

    • Chan Zuckerberg Initiative Grant Accelerates TANGO2 Research Foundation’s Funding and Hiring

      August 12, 2020 | Uncategorized

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    • About TANGO2
      • Symptoms
      • Early Signs of TANGO2
    • For Families
      • New Diagnosis
      • TANGO2 Study Now Underway
      • Our Stories
      • TANGO2 Conference – Houston 2019
      • Family Resources
      • Sammy’s Angels
      • Submit Your Story
    • Get Involved
      • Volunteer
      • Ways to Give
      • Fundraising Ideas
      • Apply For Grants (Researchers)
    • Research
    • About Us
      • Our Mission & History
      • Our Leadership
      • Scientific Advisory Board
      • Blog
      • Committees – CALL FOR VOLUNTEERS
      • Press Kit
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