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Shining a light on Oliver’s Awesome Advocates!

    Home Uncategorized Shining a light on Oliver’s Awesome Advocates!
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    Oliver's Advocates

    Shining a light on Oliver’s Awesome Advocates!

    By Ann Geffen | Uncategorized | 0 comment | 30 March, 2021 | 0

    We are happy to highlight Team Oliver’s Awesome Advocates today!

    Oliver was diagnosed with TANGO2 in 2018 when he was 13. Oliver’s parents had already been searching for an answer to his ataxia, episodes and unexplained fatigue for more than 12 years at that point. While they were relieved to have a diagnosis, the poor prognosis and the realization that TANGO2 was only discovered in 2016 made them continue the search for answers, while also being acutely aware that time was of the essence.

    As they connected with more TANGO2 families and discovered the TANGO2 Research Foundation, they realized that there were only 100+ children in the world who have been diagnosed with this disease to date, and several of them have become TANGO2 Angels.

    Today, the mission for Oliver and the TANGO2 Research Foundation is to fund research to discover immediate treatments and an ultimate cure for this ultra-rare disease. Oliver’s mom, Jamie, invites you to help spread awareness and provide hope for Oliver and other TANGO2 families by purchasing a Shine a Light on TANGO2 enamel pin.

    You can donate $10 US for each pin and add $3 US for shipping in the United States or $14.50 US for international shipping on Jamie’s fundraising page.

    In addition, the Shine a Light on TANGO2 store is now open! Go to our merchandise page to purchase your event shirt today!

    No tags.

    Ann Geffen

    More posts by Ann Geffen

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    Recent Posts

    • 2022 TANGO2 Family Conference Recap

      July 14, 2022 | Uncategorized

    • Our Foundation’s Story on Shining a Light on TANGO2

      June 14, 2022 | Uncategorized

    • Our Foundation is Hiring a Research Engagement Director!

      May 23, 2022 | Uncategorized

    • Things to Know for the Upcoming Family Conference

      April 28, 2022 | Uncategorized

    • Chan Zuckerberg Initiative Awards TANGO2 Research Foundation $150,000

      February 28, 2022 | Uncategorized

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    • About TANGO2
      • Symptoms
      • Early Signs of TANGO2
    • For Families
      • New Diagnosis
      • TANGO2 Study Now Underway
      • Our Stories
      • TANGO2 Conference – Houston 2019
      • Family Resources
      • Sammy’s Angels
      • Submit Your Story
    • Get Involved
      • Volunteer
      • Ways to Give
      • Fundraising Ideas
      • Apply For Grants (Researchers)
    • Research
    • About Us
      • Our Mission & History
      • Our Leadership
      • Scientific Advisory Board
      • Sponsors
      • Committees – CALL FOR VOLUNTEERS
      • Press Kit
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