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TANGO2 Conference – Orlando 2022

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    We are proud to invite you to the 2nd TANGO2 Family Conference June 26-28, 2022, in Orlando, Florida! The two and a half-day event is hosted by the TANGO2 Research Foundation and brings together the TANGO2 disease community for insights, fellowship and discussion.

    For many families and children affected by the rare disease, the conference will be one of the first opportunities to meet and engage with other affected families. Building these relationships is vital for combining efforts to advocate for research, treatment, therapy for this rare disease.

    The TANGO2 Research Foundation is incredibly thankful to have received a grant from the Chan Zuckerberg Initiative–as part of its Rare As One cohort– which designates funds for the specific purpose of hosting a family conference. The CZI grant will cover a large portion of the costs to attend the conference, including two nights hotel accommodations at Disney’s Coronado Springs Resort in Orlando, Florida and five meals for two days. The TANGO2 Research Foundation will provide childcare for families that need it.

    Conference attendees will hear the most up-to-date information about TANGO2 from leading experts. We encourage family participation in the research planning process as it directly influences future research initiatives for TANGO2.

    Deadline to register is May 15th.

    We are offering a complimentary Kid Camp during the conference hours of 8:00am-4:45pm on Monday 27th and Tuesday 28th. We welcome all children and young adults including siblings to participate. The opportunity for those with TANGO2 and their siblings to get to know each other was a highlight of the first conference and lasting friendships were made. We have hired a professional childcare company to make sure they are well supervised and have tons of fun. The camp will be directly across the hall from the conference room and our children can join us for lunch mid-day.  Please complete the forms below for each child or young adult that will be participating in the Kid Camp and return it to Ann Geffen at ann.geffen@tango2research.org by June 1st.

     Child- Consent Form 2022 TANGO2

    Welcome to Corporate Kids Events Inc Letter

    For information about our grants available for travel costs, please e-mail Kasha Morris at kasha.morris@tango2research.org. Deadline to apply is April 26th.

    To learn about disability accommodations at the Walt Disney World resorts, please click here.

    To know more about dining options, please click here.

    Please view the digital version of the program by clicking on this link.

    Interested in supporting this event? Click to view our Sponsorship Opportunities.

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    • Our Foundation is Hiring a Research Engagement Director!

      May 23, 2022 | Uncategorized

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      April 28, 2022 | Uncategorized

    • Chan Zuckerberg Initiative Awards TANGO2 Research Foundation $150,000

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    Contact Us

    TANGO2 Research Foundation
    300 Plaza Middlesex
    Middletown, CT 06457

    info@tango2research.org

    Copyright 2018 - 2021 - TANGO2 Research Foundation Incorporated | All Rights Reserved | PRIVACY POLICY
    • About TANGO2
      • Symptoms
      • Early Signs of TANGO2
    • For Families
      • New Diagnosis
      • TANGO2 Study Now Underway
      • Our Stories
      • TANGO2 Conference – Houston 2019
      • Family Resources
      • Sammy’s Angels
      • Submit Your Story
    • Get Involved
      • Volunteer
      • Ways to Give
      • Fundraising Ideas
      • Apply For Grants (Researchers)
    • Research
    • About Us
      • Our Mission & History
      • Our Leadership
      • Scientific Advisory Board
      • Sponsors
      • Committees – CALL FOR VOLUNTEERS
      • Press Kit
    TANGO2 Research Foundation