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Blog

Home Archive by category "Uncategorized" (Page 2)

TANGO2 Research Foundation Is Hiring – Executive Director Position Now Open!

By Mike Morris | Uncategorized | 0 comment | 3 February, 2020 | 0

Executive Director Position (** NO LONGER ACCEPTING APPLICATIONS – THANK YOU**)   The TANGO2 Research Foundation is seeking a dynamic and entrepreneurial-minded leader to serve as Executive Director. This is an exciting time to join our foundation to help create and cultivate an organization that makes a real difference and transforms the lives of TANGO2Read more

End of Year Fundraising Initiatives in Italy

By Mike Morris | Uncategorized | 0 comment | 20 January, 2020 | 0

Christmas is the the season to give and give thanks. During the most recent season, there were several initiatives that took place  in Turin to support the work of the TANGO2 Research Foundation! The events were coordinated by, or centered around Giorgio and Rashmi Pochettino, whose child Edoardo is affected by TANGO2 disease. The eventsRead more

TANGO2 Banquet Raises over $40K for Foundation

By Mike Morris | Uncategorized | 0 comment | 16 November, 2019 | 0

The Second Annual TANGO2 Benefit Banquet & Auction was held on November 10th at St. Clements Castle in Portland, CT to help Shine a Light on TANGO2. The event was hosted by Kasha and Mike Morris of East Hampton, CT whose son Ryan is affected by TANGO2 disease. The event raised over $40,000 to benefitRead more

Announcing TANGO2 Research Call for Proposals – First Cycle of Grant Funding Now Open!

By Mike Morris | Uncategorized | 0 comment | 21 October, 2019 | 0

The TANGO2 Research Foundation welcomes Researchers to submit a letter of Intent (LOI) for the first cycle of grant funding beginning in April 2020. The​ purpose of these grants is to advance the understanding of disease mechanism and treatment of TANGO2 disorder. ​Funding is available for 2-3 grants for the 2020-2021 year. Single-institution (single orRead more

Liefs voor Liam (Love for Liam) campaign raises money for Foundation

By Mike Morris | Uncategorized | 0 comment | 3 August, 2019 | 0

Angelique and Jeffrey van der Haar of Delft, Netherlands wanted to come to the TANGO2 Family Conference in Houston this past June with their son Liam, who has TANGO2, and his sister Alyssa. At the suggestion of their friends Patricia and Nathalie, they started a fundraiser to help with the expenses of traveling as aRead more

TANGO2 Family Conference 2019 – Huge Success

By Mike Morris | Uncategorized | 0 comment | 26 June, 2019 | 1

The very first TANGO2 Family Conference is now in the history books! Over 110 people – 22 families from 6 countries, almost 20 doctors and researchers and other professionals gathered in Houston last week to present research (and other topics related to TANGO2) and learn from one another. The conference was funded in large partRead more

T-Minus 1 Day – TANGO2 Family Conference – Houston 2019

By Mike Morris | Uncategorized | 0 comment | 17 June, 2019 | 0

The very first TANGO2 Family Conference, hosted by the Baylor College of Medicine and the TANGO2 Research Foundation at The Westin Houston, Memorial City is about to get underway. Families, doctors and researchers are beginning to arrive for Tuesday night’s opening Welcome Reception. At this inaugural TANGO2 Family Conference, we are honored to welcome keynoteRead more

Thank you to Italdesign, Baker Hughs, Apple and others for your support

By Mike Morris | Uncategorized | 0 comment | 13 March, 2019 | 0

The TANGO2 Research Foundation would like to extend a special thanks to the following companies who have supported us through their matching gift programs. Their generous support has raised over $23K USD for the foundation thus far.** **Many companies offer similar matching gift programs and it’s a great way to leverage a gift you mayRead more

ATTENTION TANGO2 Parents: Your participation in Baylor Study needed to help researchers learn more about the disease.

By Mike Morris | Uncategorized | 0 comment | 6 March, 2019 | 0

When a new disease such as TANGO2 is discovered, there is a lot to learn. Many of the physicians caring for children with TANGO2 have never seen or managed this disease. The best way to learn about a new disease is to gather as much information as possible. As parents living with children with TANGO2,Read more

First Ever TANGO2 Conference Announced – June 19-20th 2019 – Houston TX

By Mike Morris | Uncategorized | 0 comment | 6 February, 2019 | 0

On Wednesday, June 19th through Thursday June 20th, patients, families, doctors and other professionals will meet in Houston TX to discuss TANGO2 disease and how to best move forward with research around this rare and serious genetic disorder. The conference is made possible by a generous grant from the Patient-Centered Outcomes Research Institute (PCORI) awardedRead more

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Recent Posts

  • TANGO2 Research Project Update & Podcast

    January 21, 2021 | Uncategorized

  • Teaming up with Solace Nutrition to help increase the quality of life for those with TANGO2 Disease

    December 1, 2020 | Uncategorized

  • Meet Agathe De Miniac, Author of ‘Tango2’

    November 11, 2020 | Uncategorized

  • RARE DISEASE CONNECTION TANGO2 PODCAST: Everything to know about TANGO2, from the experts

    October 7, 2020 | Uncategorized

  • FRIENDS & FAMILY RALLY FOR RYAN

    September 21, 2020 | Uncategorized

Contact Us

TANGO2 Research Foundation
300 Plaza Middlesex
Middletown, CT 06457

info@tango2research.org

Copyright 2018 - TANGO2 Research Foundation Incorporated | All Rights Reserved
  • About TANGO2
    • Symptoms
    • Early Signs of TANGO2
  • For Families
    • New Diagnosis
    • TANGO2 Study Now Underway
    • Our Stories
    • TANGO2 Conference – Houston 2019
    • Family Resources
    • Sammy’s Angels
    • Submit Your Story
  • Get Involved
    • Volunteer
    • Ways to Give
    • Fundraising Ideas
    • Apply For Grants (Researchers)
  • Research
  • About Us
    • Our Mission & History
    • Our Leadership
    • Scientific Advisory Board
    • Blog
    • Committees – CALL FOR VOLUNTEERS
    • Press Kit
TANGO2 Research Foundation