info@tango2research.org
| Better Understanding Through Research
TANGO2 Research FoundationTANGO2 Research FoundationTANGO2 Research FoundationTANGO2 Research Foundation
  • Home
  • About TANGO2
    • Symptoms
    • Early Signs of TANGO2
  • Patients & Families
    • New Diagnosis
    • TANGO2 Study Now Underway
    • Our Stories
    • Patient Registry
      • Primary Clinical Profile
      • Therapy & Drug Profile
    • TANGO2 Conference – Houston 2019
    • Family Resources
    • Submit Your Story
  • Get Involved
    • Volunteer
    • Ways to Give
    • Fundraising Ideas
    • Apply For Grants (Researchers)
  • About Us
    • Our Mission & History
    • Our Leadership
    • Scientific Advisory Board
    • Committees – CALL FOR VOLUNTEERS
    • Press Kit

Blog

Home Archive by category "Uncategorized" (Page 2)

Notes from a Rare Disease Mom – New Blog by TANGO2 Mom

By Mike Morris | Uncategorized | 0 comment | 12 September, 2018 | 1

Veronica, Thea’s Mom, has started a blog sharing her and her family’s TANGO2 journey – click here to go to Notes from a Rare Disease Mom From Veronica: “In 2017, my then 2 year old daughter was diagnosed with a rare disease called Tango2 disease. Since then, we have been searching for answers and treatments.Read more

Why Should I Participate in the TANGO2 Natural History Study?

By Mike Morris | Uncategorized | 0 comment | 12 August, 2018 | 1

A natural history is the single best avenue to study traits of TANGO2 and how these traits progress over time With so little currently known about TANGO2, the collective data in a natural history study provides a resource to physicians that can potentially help treat children in crisis today A natural history study can helpRead more

TANGO2 Study Announced – Baylor (BCM) IRB Protocol Approved!

By Mike Morris | Uncategorized | 0 comment | 23 May, 2018 | 1

UPDATE 6/7/2018 – NOW ACCEPTING PATIENTSFamilies can contact Dr. Christina Miyake at cymiyake@bcm.edu for further information. We received word at this past Sunday’s TANGO2 Research Foundation board meeting that the Baylor IRB protocol for a TANGO2 Study has been approved! The official title of the IRB is Understanding the underlying mechanism of TANGO2 disease –Read more

12

Recent Posts

  • TANGO2 Banquet Raises over $40K for Foundation

    November 16, 2019 | Uncategorized

  • Another Highly Successful TANGO2 Fundraiser in Turin, Italy!

    November 12, 2019 | Events

  • Announcing TANGO2 Research Call for Proposals – First Cycle of Grant Funding Now Open!

    October 21, 2019 | Uncategorized

  • Liefs voor Liam (Love for Liam) campaign raises money for Foundation

    August 3, 2019 | Uncategorized

  • TANGO2 Family Conference 2019 – Huge Success

    June 26, 2019 | Uncategorized

Contact Us

TANGO2 Research Foundation
300 Plaza Middlesex
Middletown, CT 06457

info@tango2research.org

Copyright 2018 - TANGO2 Research Foundation Incorporated | All Rights Reserved
  • Home
  • About TANGO2
    • Symptoms
    • Early Signs of TANGO2
  • Patients & Families
    • New Diagnosis
    • TANGO2 Study Now Underway
    • Our Stories
    • Patient Registry
      • Primary Clinical Profile
      • Therapy & Drug Profile
    • TANGO2 Conference – Houston 2019
    • Family Resources
    • Submit Your Story
  • Get Involved
    • Volunteer
    • Ways to Give
    • Fundraising Ideas
    • Apply For Grants (Researchers)
  • About Us
    • Our Mission & History
    • Our Leadership
    • Scientific Advisory Board
    • Committees – CALL FOR VOLUNTEERS
    • Press Kit
TANGO2 Research Foundation