info@tango2research.org
| Better Understanding Through Research
TANGO2 Research FoundationTANGO2 Research FoundationTANGO2 Research FoundationTANGO2 Research Foundation
  • About TANGO2
    • Symptoms
    • Early Signs of TANGO2
  • For Families
    • New Diagnosis
    • TANGO2 Study Now Underway
    • Our Stories
    • TANGO2 Conference – Houston 2019
    • Family Resources
    • Sammy’s Angels
    • Submit Your Story
  • Get Involved
    • Volunteer
    • Ways to Give
    • Fundraising Ideas
    • Apply For Grants (Researchers)
  • Research
  • About Us
    • Our Mission & History
    • Our Leadership
    • Scientific Advisory Board
    • Sponsors
    • Committees – CALL FOR VOLUNTEERS
    • Press Kit

Blog

Home Archive by category "Uncategorized" (Page 2)

Shine a Light on TANGO2 Celebrate & Learn – In case you missed it!

By Ann Geffen | Uncategorized | 0 comment | 7 July, 2021 | 1

On June 26th, our Foundation had a successful virtual event celebrating on TANGO2 community. We celebrated our amazing team captains, participants and donors for surpassing our fundraising goal. We also heard from one of our research grantees, Dr. Michael Sacher, and launched our CoRDS TANGO2 patient registry. Click to watch the recording here and view allRead more

FAMILY SPOTLIGHT: Meet the Longmans

By Ann Geffen | Uncategorized | 0 comment | 25 June, 2021 | 0

The families of our TANGO2 warriors have been an immense source of support and outreach for their warriors and our cause. Just this week, David Longman organized a POKER FOR TANGO2 fundraising event to honor his son’s, Erling, journey living with TANGO2 disease as part of the Shine a Light on TANGO2 campaign. Around 32Read more

Meet Our New Fundraising Committee Chair

By Ann Geffen | Uncategorized | 0 comment | 4 June, 2021 | 1

We are pleased to announce the transition of leadership for our Fundraising Committee. Our outgoing chair, Kara Dort, has accepted the role of Board Treasurer after successfully leading the fundraising committee and campaign to exceed our goal. Take a moment and meet Sam, our new Fundraising Committee Chair. Get to know Sam and read why sheRead more

East Hampton Has Heart

By Ann Geffen | Uncategorized | 0 comment | 21 May, 2021 | 0

This month, the community of East Hampton, Connecticut held two fundraising events to support Team Ryan’s Shine a Light on TANGO2 campaign! The first event was at Po’s Rice and Spice in the historic district of East Hampton. Guests enjoyed delicious and innovative Thai dishes while supporting Ryan, an East Hampton native, who was bornRead more

Shining a Light on McKenna Messerschmidt

By Ann Geffen | Uncategorized | 0 comment | 20 April, 2021 | 1

If you were on our Shine a Light on TANGO2 kickoff event back in February, you met Lindsey and Brad Messerschmidt! Lindsey and Brad are parents to three children diagnosed with TANGO2 disease. They live in Spokane, Washington. Their first son Jackson passed away at the age of three and at the time, he did not haveRead more

Oliver's Advocates

Shining a light on Oliver’s Awesome Advocates!

By Ann Geffen | Uncategorized | 0 comment | 30 March, 2021 | 0

We are happy to highlight Team Oliver’s Awesome Advocates today! Oliver was diagnosed with TANGO2 in 2018 when he was 13. Oliver’s parents had already been searching for an answer to his ataxia, episodes and unexplained fatigue for more than 12 years at that point. While they were relieved to have a diagnosis, the poorRead more

Rare Disease Day Special Highlight: Living with a Unicorn

By Ann Geffen | Uncategorized | 0 comment | 28 February, 2021 | 0

This Rare Disease Day, the TANGO2 Research Foundation highlights “Living with a Unicorn” –  a blog by Gloria McDonald, Olivia’s mom. Gloria talks about Olivia, her diagnosis of TANGO2 disease, how their life changed, what they’ve learned along the way, and more. Gloria writes, “We hope that you will feel encouraged and inspired by Olivia’sRead more

TANGO2 Research Project Update & Podcast

By Ann Geffen | Uncategorized | 0 comment | 21 January, 2021 | 2

In Spring of 2020, the TANGO2 Research Foundation granted Dr. Michael Sacher and Dr. Felix Distelmaier an award for their research proposal entitled Characterization Of Human TANGO2: From Biological Function To Therapeutic Strategies. Less than a year later, we are pleased to share that we already have research updates and progress. Dr. Sacher and his team have used fibroblastsRead more

Teaming up with Solace Nutrition to help increase the quality of life for those with TANGO2 Disease

By Ann Geffen | Uncategorized | 0 comment | 1 December, 2020 | 1

Solace Nutrition has teamed up with the TANGO2 Research Foundation to help support our mission of leading the way in finding a cure for TANGO2 related disease.  Solace Nutrition seeks to develop medical nutritional products with a strong scientific background that target diseases which can be better managed through nutrition and thus promote quality ofRead more

Meet Agathe De Miniac, Author of ‘Tango2’

By Ann Geffen | Uncategorized | 0 comment | 11 November, 2020 | 0

Our foundation interviewed Agathe De Miniac for our blog this month. Agathe wrote a book about her family being shaken up by the arrival of three disabled children. We are pleased to share this interview in both English and French below. Click for more information or to purchase the book.   What are the names andRead more

12345

Recent Posts

  • Our Foundation is Hiring a Research Engagement Director!

    May 23, 2022 | Uncategorized

  • Things to Know for the Upcoming Family Conference

    April 28, 2022 | Uncategorized

  • Chan Zuckerberg Initiative Awards TANGO2 Research Foundation $150,000

    February 28, 2022 | Uncategorized

  • This Monday, February 28th is Rare Disease Day

    February 24, 2022 | Uncategorized

  • Meet Our Newest Board Member

    January 18, 2022 | Uncategorized

Contact Us

TANGO2 Research Foundation
300 Plaza Middlesex
Middletown, CT 06457

info@tango2research.org

Copyright 2018 - 2021 - TANGO2 Research Foundation Incorporated | All Rights Reserved | PRIVACY POLICY
  • About TANGO2
    • Symptoms
    • Early Signs of TANGO2
  • For Families
    • New Diagnosis
    • TANGO2 Study Now Underway
    • Our Stories
    • TANGO2 Conference – Houston 2019
    • Family Resources
    • Sammy’s Angels
    • Submit Your Story
  • Get Involved
    • Volunteer
    • Ways to Give
    • Fundraising Ideas
    • Apply For Grants (Researchers)
  • Research
  • About Us
    • Our Mission & History
    • Our Leadership
    • Scientific Advisory Board
    • Sponsors
    • Committees – CALL FOR VOLUNTEERS
    • Press Kit
TANGO2 Research Foundation