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Blog

Home Archive by category "Uncategorized" (Page 3)

TANGO2 In The News – Baby Olivia’s Story

By Mike Morris | Uncategorized | 0 comment | 30 October, 2018 | 0

Two news outlets in British Columbia recently ran stories about Baby Olivia (McDonald), who was diagnosed with TANGO2 disease in July of this year. These two stories share the ongoing journey and struggles of Olivia and her parents, Chris and Gloria McDonald, as they and doctors battle this serious disease. Please take the time toRead more

Notes from a Rare Disease Mom – New Blog by TANGO2 Mom

By Mike Morris | Uncategorized | 0 comment | 12 September, 2018 | 1

Veronica, Thea’s Mom, has started a blog sharing her and her family’s TANGO2 journey – click here to go to Notes from a Rare Disease Mom From Veronica: “In 2017, my then 2 year old daughter was diagnosed with a rare disease called Tango2 disease. Since then, we have been searching for answers and treatments.Read more

Why Should I Participate in the TANGO2 Natural History Study?

By Mike Morris | Uncategorized | 0 comment | 12 August, 2018 | 1

A natural history is the single best avenue to study traits of TANGO2 and how these traits progress over time With so little currently known about TANGO2, the collective data in a natural history study provides a resource to physicians that can potentially help treat children in crisis today A natural history study can helpRead more

TANGO2 Study Announced – Baylor (BCM) IRB Protocol Approved!

By Mike Morris | Uncategorized | 0 comment | 23 May, 2018 | 1

UPDATE 6/7/2018 – NOW ACCEPTING PATIENTSFamilies can contact Dr. Christina Miyake at cymiyake@bcm.edu for further information. We received word at this past Sunday’s TANGO2 Research Foundation board meeting that the Baylor IRB protocol for a TANGO2 Study has been approved! The official title of the IRB is Understanding the underlying mechanism of TANGO2 disease –Read more

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Recent Posts

  • Teaming up with Solace Nutrition to help increase the quality of life for those with TANGO2 Disease

    December 1, 2020 | Uncategorized

  • Meet Agathe De Miniac, Author of ‘Tango2’

    November 11, 2020 | Uncategorized

  • RARE DISEASE CONNECTION TANGO2 PODCAST: Everything to know about TANGO2, from the experts

    October 7, 2020 | Uncategorized

  • FRIENDS & FAMILY RALLY FOR RYAN

    September 21, 2020 | Uncategorized

  • Chan Zuckerberg Initiative Grant Accelerates TANGO2 Research Foundation’s Funding and Hiring

    August 12, 2020 | Uncategorized

Contact Us

TANGO2 Research Foundation
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info@tango2research.org

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  • About TANGO2
    • Symptoms
    • Early Signs of TANGO2
  • For Families
    • New Diagnosis
    • TANGO2 Study Now Underway
    • Our Stories
    • TANGO2 Conference – Houston 2019
    • Family Resources
    • Sammy’s Angels
    • Submit Your Story
  • Get Involved
    • Volunteer
    • Ways to Give
    • Fundraising Ideas
    • Apply For Grants (Researchers)
  • Research
  • About Us
    • Our Mission & History
    • Our Leadership
    • Scientific Advisory Board
    • Blog
    • Committees – CALL FOR VOLUNTEERS
    • Press Kit
TANGO2 Research Foundation