Blog

This Rare Disease Day, the TANGO2 Research Foundation highlights “Living with a Unicorn” –  a blog by Gloria McDonald, Olivia’s mom. Gloria talks about Olivia, her diagnosis of TANGO2 disease, how their life changed, what they’ve learned along the way, and more. Gloria writes, “We hope that you will feel encouraged and inspired by Olivia’sRead more

In Spring of 2020, the TANGO2 Research Foundation granted Dr. Michael Sacher and Dr. Felix Distelmaier an award for their research proposal entitled Characterization Of Human TANGO2: From Biological Function To Therapeutic Strategies. Less than a year later, we are pleased to share that we already have research updates and progress. Dr. Sacher and his team have used fibroblastsRead more

Solace Nutrition has teamed up with the TANGO2 Research Foundation to help support our mission of leading the way in finding a cure for TANGO2 related disease.  Solace Nutrition seeks to develop medical nutritional products with a strong scientific background that target diseases which can be better managed through nutrition and thus promote quality ofRead more

Our foundation interviewed Agathe De Miniac for our blog this month. Agathe wrote a book about her family being shaken up by the arrival of three disabled children. We are pleased to share this interview in both English and French below. Click for more information or to purchase the book.   What are the names andRead more

We are pleased to share that Rare Disease Connection, a production of Aspect Health and raredisease.com, recently hosted a podcast with friends of our foundation! Sheena Byerly hosted Dr. Seema Lalani, Jayme Gilmore, and Lindsey Messerschmidt and featured their expertise and experiences with TANGO2 disease. TANGO2 disease has only been described in the last severalRead more

This month, friends and family of Ryan Morris held a successful fundraiser to honor his journey living with TANGO2 disease. Ryan’s aunts, uncles, cousins and friends rallied together and gathered donations to set up a booth at the first area Flea Market of the season.  Donations were collected from across eight different states that includedRead more

FOR IMMEDIATE RELEASE   CONTACT: Ann Geffen, Executive Director PHONE: 407-459-4427 EMAIL: ann.geffen@tango2research.org   CHAN ZUCKERBERG INITIATIVE GRANT ACCELERATES TANGO2 RESEARCH FOUNDATION’S  FUNDING OF CRITICAL RESEARCH AND HIRING OF EXECUTIVE DIRECTOR   MIDDLETOWN, Conn. (August 12, 2020) –  Within six months of receiving funding from the Chan Zuckerberg Initiative (CZI), the TANGO2 Research Foundation (T2RF)Read more

It is with pleasure that we announce the new Executive Director of the Tango2 Research Foundation. Ann Geffen joins us with an extensive and all-encompassing nonprofit background. Geffen came to the Tango2 Research Foundation from March of Dimes, where she was a National Account Manager and previously an Executive Director. There, she managed several accounts,Read more

Our Summer 2020 Newsletter is now available! Please click image below to learn more about all the exciting things going on at the TANGO2 Research Foundation as we continue our search for answers. Be sure to Subscribe to Our newsletter to receive it in your inbox.Read more

The TANGO2 Research Foundation is excited to share more details around our first cycle of grant funding that was awarded in April 2020! As expected, there has been a bit of a delay getting actual research underway due to COVID-19, but some labs have begun to open up and others are expected to in theRead more