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Blog

Home Archive by category "Uncategorized" (Page 4)

Announcing TANGO2 Research Call for Proposals – First Cycle of Grant Funding Now Open!

By Mike Morris | Uncategorized | 0 comment | 21 October, 2019 | 0

The TANGO2 Research Foundation welcomes Researchers to submit a letter of Intent (LOI) for the first cycle of grant funding beginning in April 2020. The​ purpose of these grants is to advance the understanding of disease mechanism and treatment of TANGO2 disorder. ​Funding is available for 2-3 grants for the 2020-2021 year. Single-institution (single orRead more

Liefs voor Liam (Love for Liam) campaign raises money for Foundation

By Mike Morris | Uncategorized | 0 comment | 3 August, 2019 | 0

Angelique and Jeffrey van der Haar of Delft, Netherlands wanted to come to the TANGO2 Family Conference in Houston this past June with their son Liam, who has TANGO2, and his sister Alyssa. At the suggestion of their friends Patricia and Nathalie, they started a fundraiser to help with the expenses of traveling as aRead more

TANGO2 Family Conference 2019 – Huge Success

By Mike Morris | Uncategorized | 0 comment | 26 June, 2019 | 1

The very first TANGO2 Family Conference is now in the history books! Over 110 people – 22 families from 6 countries, almost 20 doctors and researchers and other professionals gathered in Houston last week to present research (and other topics related to TANGO2) and learn from one another. The conference was funded in large partRead more

T-Minus 1 Day – TANGO2 Family Conference – Houston 2019

By Mike Morris | Uncategorized | 0 comment | 17 June, 2019 | 0

The very first TANGO2 Family Conference, hosted by the Baylor College of Medicine and the TANGO2 Research Foundation at The Westin Houston, Memorial City is about to get underway. Families, doctors and researchers are beginning to arrive for Tuesday night’s opening Welcome Reception. At this inaugural TANGO2 Family Conference, we are honored to welcome keynoteRead more

Thank you to Italdesign, Baker Hughs, Apple and others for your support

By Mike Morris | Uncategorized | 0 comment | 13 March, 2019 | 0

The TANGO2 Research Foundation would like to extend a special thanks to the following companies who have supported us through their matching gift programs. Their generous support has raised over $23K USD for the foundation thus far.** **Many companies offer similar matching gift programs and it’s a great way to leverage a gift you mayRead more

ATTENTION TANGO2 Parents: Your participation in Baylor Study needed to help researchers learn more about the disease.

By Mike Morris | Uncategorized | 0 comment | 6 March, 2019 | 0

When a new disease such as TANGO2 is discovered, there is a lot to learn. Many of the physicians caring for children with TANGO2 have never seen or managed this disease. The best way to learn about a new disease is to gather as much information as possible. As parents living with children with TANGO2,Read more

First Ever TANGO2 Conference Announced – June 19-20th 2019 – Houston TX

By Mike Morris | Uncategorized | 0 comment | 6 February, 2019 | 0

On Wednesday, June 19th through Thursday June 20th, patients, families, doctors and other professionals will meet in Houston TX to discuss TANGO2 disease and how to best move forward with research around this rare and serious genetic disorder. The conference is made possible by a generous grant from the Patient-Centered Outcomes Research Institute (PCORI) awardedRead more

Ellie’s Story

By Mike Morris | Uncategorized | 0 comment | 21 December, 2018 | 1

Thank you so much to Laura and Blake Moore of Tahoka TX for sharing their daughter Ellie’s story with Juanell Jones of the Lynn County News and helping raise awareness for TANGO2. This is a wonderful article that touches upon the experiences, challenges, uncertainties and hope of one family raising a child affected by TANGO2Read more

TANGO2 In The News – Baby Olivia’s Story

By Mike Morris | Uncategorized | 0 comment | 30 October, 2018 | 0

Two news outlets in British Columbia recently ran stories about Baby Olivia (McDonald), who was diagnosed with TANGO2 disease in July of this year. These two stories share the ongoing journey and struggles of Olivia and her parents, Chris and Gloria McDonald, as they and doctors battle this serious disease. Please take the time toRead more

Notes from a Rare Disease Mom – New Blog by TANGO2 Mom

By Mike Morris | Uncategorized | 0 comment | 12 September, 2018 | 1

Veronica, Thea’s Mom, has started a blog sharing her and her family’s TANGO2 journey – click here to go to Notes from a Rare Disease Mom From Veronica: “In 2017, my then 2 year old daughter was diagnosed with a rare disease called Tango2 disease. Since then, we have been searching for answers and treatments.Read more

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Recent Posts

  • Our Foundation is Hiring a Research Engagement Director!

    May 23, 2022 | Uncategorized

  • Things to Know for the Upcoming Family Conference

    April 28, 2022 | Uncategorized

  • Chan Zuckerberg Initiative Awards TANGO2 Research Foundation $150,000

    February 28, 2022 | Uncategorized

  • This Monday, February 28th is Rare Disease Day

    February 24, 2022 | Uncategorized

  • Meet Our Newest Board Member

    January 18, 2022 | Uncategorized

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TANGO2 Research Foundation
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info@tango2research.org

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  • About TANGO2
    • Symptoms
    • Early Signs of TANGO2
  • For Families
    • New Diagnosis
    • TANGO2 Study Now Underway
    • Our Stories
    • TANGO2 Conference – Houston 2019
    • Family Resources
    • Sammy’s Angels
    • Submit Your Story
  • Get Involved
    • Volunteer
    • Ways to Give
    • Fundraising Ideas
    • Apply For Grants (Researchers)
  • Research
  • About Us
    • Our Mission & History
    • Our Leadership
    • Scientific Advisory Board
    • Sponsors
    • Committees – CALL FOR VOLUNTEERS
    • Press Kit
TANGO2 Research Foundation