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Home Archive by category "Uncategorized" (Page 5)

Why Should I Participate in the TANGO2 Natural History Study?

By Mike Morris | Uncategorized | 0 comment | 12 August, 2018 | 1

A natural history is the single best avenue to study traits of TANGO2 and how these traits progress over time With so little currently known about TANGO2, the collective data in a natural history study provides a resource to physicians that can potentially help treat children in crisis today A natural history study can helpRead more

TANGO2 Study Announced – Baylor (BCM) IRB Protocol Approved!

By Mike Morris | Uncategorized | 0 comment | 23 May, 2018 | 1

UPDATE 6/7/2018 – NOW ACCEPTING PATIENTSFamilies can contact Dr. Christina Miyake at cymiyake@bcm.edu for further information. We received word at this past Sunday’s TANGO2 Research Foundation board meeting that the Baylor IRB protocol for a TANGO2 Study has been approved! The official title of the IRB is Understanding the underlying mechanism of TANGO2 disease –Read more

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Recent Posts

  • Our Foundation is Hiring a Research Engagement Director!

    May 23, 2022 | Uncategorized

  • Things to Know for the Upcoming Family Conference

    April 28, 2022 | Uncategorized

  • Chan Zuckerberg Initiative Awards TANGO2 Research Foundation $150,000

    February 28, 2022 | Uncategorized

  • This Monday, February 28th is Rare Disease Day

    February 24, 2022 | Uncategorized

  • Meet Our Newest Board Member

    January 18, 2022 | Uncategorized

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  • About TANGO2
    • Symptoms
    • Early Signs of TANGO2
  • For Families
    • New Diagnosis
    • TANGO2 Study Now Underway
    • Our Stories
    • TANGO2 Conference – Houston 2019
    • Family Resources
    • Sammy’s Angels
    • Submit Your Story
  • Get Involved
    • Volunteer
    • Ways to Give
    • Fundraising Ideas
    • Apply For Grants (Researchers)
  • Research
  • About Us
    • Our Mission & History
    • Our Leadership
    • Scientific Advisory Board
    • Sponsors
    • Committees – CALL FOR VOLUNTEERS
    • Press Kit
TANGO2 Research Foundation