The very first TANGO2 Family Conference was held on June 19th – 20th and was a huge success in every way. Over 110 people – 22 families from 6 countries, almost 20 doctors and researchers and other professionals gathered in Houston last week to present research (and other topics related to TANGO2) and learn from one another.
The conference was funded in large part by a grant from PCORI (Patient Centered Outcomes Research Institute) and led by Dr. Seema Lalani, Associate Professor – Baylor College of Medicine and TANGO2 Research Foundation board member. A Conference Planning Committee, comprised of members of the parent community and the TANGO2 Research Foundation, assisted Dr. Lalani in what resulted in a truly amazing conference for all those involved.
For many families and children affected by TANGO2 disease, it was the first time they had an opportunity to meet with and interact with other affected families. The friendships made and stories shared help set the stage for working together to find treatments and therapies for this disease.