The Patient Registry has been broken out into two forms for ease of data entry. Please click on buttons below to get started – be sure to FILL OUT BOTH forms below when adding a new patient/child to the TANGO2 Research Foundation Patient Registry.
Patient Registry
TANGO2 Patient Registry Purpose
The TANGO2 Patient Registry’s purpose is to gather demographic and clinical information on TANGO2 patients in both a centralized location and standard format. It was created to serve the Parent, Patient, Physician, and Research communities as we strive for a better understanding of TANGO2 on the path to a cure. Registry Data is NOT PUBLIC by default and WILL ONLY BE SHARED with parents, researchers and physicians/clinicians UPON REQUEST.Request Patient Registry Data
If you are a Parent, Patient, Doctor or Researcher and would like access to the TANGO2 Patient Registry data, please send an email to info@tango2research.org with your name, contact information and reason for interest in registry data. Only Parents who have registered their child or members of the medical and scientific community who have been verified will be granted access.
Recent Posts
-
Notes from a Rare Disease Mom – New Blog by TANGO2 Mom
September 12, 2018 | Uncategorized
-
TANGO2 In The News – Sammy’s Story
September 5, 2018 | Uncategorized
-
TANGO2 Research Foundation Announces Funding of First Research Award
August 18, 2018 | Research
-
Why Should I Participate in the TANGO2 Natural History Study?
August 12, 2018 | Uncategorized
-
TANGO2 Research Foundation partners with NORD
June 29, 2018 | In the News