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Patient Registry

    Home Patient Registry

    The TANGO2 Research has partnered with the Foundation Coordination of Rare Diseases at Sanford (CoRDS) to house patient registry data. CoRDS is a centralized international patient registry for rare diseases.

    Go to CoRDS Registry Now

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    Our Mission

    Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding of how TANGO2 mutations affect people at the most basic cellular and biochemical pathway levels.

    Recent Posts

    • Our Foundation is Hiring a Research Engagement Director!

      May 23, 2022 | Uncategorized

    • Things to Know for the Upcoming Family Conference

      April 28, 2022 | Uncategorized

    • Chan Zuckerberg Initiative Awards TANGO2 Research Foundation $150,000

      February 28, 2022 | Uncategorized

    • This Monday, February 28th is Rare Disease Day

      February 24, 2022 | Uncategorized

    • Meet Our Newest Board Member

      January 18, 2022 | Uncategorized

    Contact Us

    TANGO2 Research Foundation
    300 Plaza Middlesex
    Middletown, CT 06457

    info@tango2research.org

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    • About TANGO2
      • Symptoms
      • Early Signs of TANGO2
    • For Families
      • New Diagnosis
      • TANGO2 Study Now Underway
      • Our Stories
      • TANGO2 Conference – Houston 2019
      • Family Resources
      • Sammy’s Angels
      • Submit Your Story
    • Get Involved
      • Volunteer
      • Ways to Give
      • Fundraising Ideas
      • Apply For Grants (Researchers)
    • Research
    • About Us
      • Our Mission & History
      • Our Leadership
      • Scientific Advisory Board
      • Sponsors
      • Committees – CALL FOR VOLUNTEERS
      • Press Kit
    TANGO2 Research Foundation