The TANGO2 Patient Registry’s purpose is to gather demographic and clinical information on TANGO2 patients in both a centralized location and standard format. It was created to serve the Parent, Patient, Physician, and Research communities as we strive for a better understanding of TANGO2 on the path to a cure. Registry Data is NOT PUBLIC by default and WILL ONLY BE SHARED with parents, researchers and physicians/clinicians UPON REQUEST.
Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding of how TANGO2 mutations affect people at the most basic cellular and biochemical pathway levels.