Aislynn is 15 months old. We call her our little ray of sunshine because her middle name is Rae. She is so "rotten." We call her rotten because she was always getting in to everything before she got sick. She would get into the silverware in our dishwasher. She would unfold clothes that I was folding on her floor. She was just being a cute, rotten baby and we really missed that side of her in the hospital. Rae loves music. She will dance to any beat and loves playing with her older sister. Our girls are so close with one another. They are two years apart. We love camping and swimming. We just hope that our Aislynn will be able to continue to do the things she loves with this diagnosis.
The diagnosis of TANGO2 for Aislynn came two weeks after she was admitted to Cincinnati Children's hospital. Up until this point, she has developed normally. She met all milestones besides not walking yet. But our pediatrician wasn't concerned with how she was growing. I was actually in the hospital with my other daughter Adelaide who was being treated for Kawasaki disease when my husband calls me and tells me that Aislynn won't wake up from her nap. After rushing her to the emergency room and being transferred to the children's hospital, and so many tests, our genome sequencing results revealed her diagnosis of TANGO2. With her being unresponsive and her blood sugar dropping so low, she has a lot of brain damage. We're not sure what her recovery will look like yet. We are still in the ICU.