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Carlotta

    Home Staff Carlotta

    Carlotta

    Italy, Europe
    Carlotta is 2 years old and is Edoardo’s younger sister. She was diagnosed with Tango2 when she was 1 year old. So far she has no evident symptoms. Carlotta started crawling at 8 months and walking at 15 months. She luckily has never had rhabdomiolysis. She is very shy and gets frustrated easily if she cannot do things. She is very attached to her brother and tries to help him in his daily activities. From the cognitive point of view, she understands everything but she is very delayed in her verbal communication. She can only say a few words. We think this is part of the delay most tango2 children present with, but we do not know how she will evolve.

    Recent Posts

    • TANGO2 Research Project Update & Podcast

      January 21, 2021 | Uncategorized

    • Teaming up with Solace Nutrition to help increase the quality of life for those with TANGO2 Disease

      December 1, 2020 | Uncategorized

    • Meet Agathe De Miniac, Author of ‘Tango2’

      November 11, 2020 | Uncategorized

    • RARE DISEASE CONNECTION TANGO2 PODCAST: Everything to know about TANGO2, from the experts

      October 7, 2020 | Uncategorized

    • FRIENDS & FAMILY RALLY FOR RYAN

      September 21, 2020 | Uncategorized

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    • About TANGO2
      • Symptoms
      • Early Signs of TANGO2
    • For Families
      • New Diagnosis
      • TANGO2 Study Now Underway
      • Our Stories
      • TANGO2 Conference – Houston 2019
      • Family Resources
      • Sammy’s Angels
      • Submit Your Story
    • Get Involved
      • Volunteer
      • Ways to Give
      • Fundraising Ideas
      • Apply For Grants (Researchers)
    • Research
    • About Us
      • Our Mission & History
      • Our Leadership
      • Scientific Advisory Board
      • Blog
      • Committees – CALL FOR VOLUNTEERS
      • Press Kit
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