Cohen

Cohen is 11. We finally found out he had Tango2 about 3 years ago after many years traveling all over the US visiting different specialists. He presented at 15 months when he began having atonic seizures that were noise induced. He had a metabolic crisis at 23 months after we put him on the "ketogenic diet" for his epilepsy. Needless to say it was the absolute worse thing we could have done. After 5 days on it he woke up screaming and his blood sugar dropped to 12. He was hospitalized for a month with a CK over 250k. He is the happiest child you will meet. Always a smile on his face despite his daily challenges. He has developmental delays, balance issues and seizures but definitely has a zest for life!