Olivia is our first daughter, she was diagnosed with tango 2 gene deletion at 7 months old after a metabolic crisis. Since then we have been by her side in the hospital. She is full of life, happy, and forgiving. She loves to be read to and going for walks. She is very forgiving to the nurses in the hospital after they come to draw blood and check vitals. We have had such an overwhelming amount of support from our friends, family, and community. Her diagnosis is palliative, but hopefully with research we can find a cure before her clock runs out.