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TANGO2 Study Now Underway

    Home TANGO2 Study Now Underway

    PARTICIPATION IS CRITICAL

    Participation in this study by as many patients as possible is critical in learning more about how to prevent crisis, treat those children currently in crisis and begin the work of finding new treatments and therapies for TANGO2 disease.
    Click Here to Get Started Today!

    Researchers at Baylor College of Medicine & Texas Children’s Hospital in Houston, Texas are conducting research on TANGO2-related disease. The purpose of this study is to gather medical information to develop patient registry and to collect biological samples on children/parents for future studies. The researchers are requesting medical history and family history from the participating families. Diagnostic studies such as electrocardiograms, electrophysiology studies, echocardiograms, cardiac catheterization records and prior testing for genetic conditions will be requested. Parents will be asked to sign medical release to access prior hospitalization records. If skin fibroblast cell line has been established previously in children in clinical/research labs, parents will be asked to provide medical release to obtain these cell lines as well.

    All records are welcome – including those who also have 22q Deletion/DiGeorge syndrome as well from those children who have passed.

    Study Contacts: Drs. Lalani, Miyake, Soler and  Azamian
    Email: tango2.research@bcm.edu
    Document/Records Fax Number: 713-798-5950

    Why Should I Participate?

    • A natural history is the single best avenue to study traits of TANGO2 and how these traits progress over time
    • With so little currently known about TANGO2, the collective data in a natural history study provides a resource to physicians that can potentially help treat children in crisis today
    • A natural history study can help identify and prioritize areas of focus for future research
    • The natural history study provides the beginning of a centralized patient registry – critical for future clinical trials around treatment and management of the disease
    • A natural history study provides the environment to establish both tissue and blood repositories (biorepositories). This biorepository is the basis for researchers studying the disease at the cellular or molecular level

     

    PLEASE CLICK ON CHECKLIST/CHEAT-SHEET BELOW TO DOWNLOAD & GET STARTED !

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    Our Mission

    Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding of how TANGO2 mutations affect people at the most basic cellular and biochemical pathway levels.

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      November 11, 2020 | Uncategorized

    • RARE DISEASE CONNECTION TANGO2 PODCAST: Everything to know about TANGO2, from the experts

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    • FRIENDS & FAMILY RALLY FOR RYAN

      September 21, 2020 | Uncategorized

    • Chan Zuckerberg Initiative Grant Accelerates TANGO2 Research Foundation’s Funding and Hiring

      August 12, 2020 | Uncategorized

    Contact Us

    TANGO2 Research Foundation
    300 Plaza Middlesex
    Middletown, CT 06457

    info@tango2research.org

    Copyright 2018 - TANGO2 Research Foundation Incorporated | All Rights Reserved
    • About TANGO2
      • Symptoms
      • Early Signs of TANGO2
    • For Families
      • New Diagnosis
      • TANGO2 Study Now Underway
      • Our Stories
      • TANGO2 Conference – Houston 2019
      • Family Resources
      • Sammy’s Angels
      • Submit Your Story
    • Get Involved
      • Volunteer
      • Ways to Give
      • Fundraising Ideas
      • Apply For Grants (Researchers)
    • Research
    • About Us
      • Our Mission & History
      • Our Leadership
      • Scientific Advisory Board
      • Blog
      • Committees – CALL FOR VOLUNTEERS
      • Press Kit
    TANGO2 Research Foundation