Dr. Christina Miyake, a pediatric cardiologist and Director of the Cardiovascular Genetics Arrhythmia Program at Baylor College of Medicine, is a founding member of our Scientific Advisory Board and a…
A Remarkable Discovery: The Oldest Known Case of TDD
We’re excited to share a groundbreaking new development in TANGO2 research that brings both hope and new insights to our community. A recently published case report has identified the oldest…
Amanda Hull joined the community in 2018, seeking connection, support, and hope for her son Sebby. Based in Suffolk, United Kingdom, Amanda is a dedicated mother of three and works…