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Welcome to Sammy’s Angels wall. This is a place where we honor and remember all TANGO2-related deficiency disorder children and adults who have passed away. We call this wall Sammy’s Angels in memory of Sammy Lopez, who gained his angel wings on October 23, 2018 at the age of 18. Sammy was a very special young man. He is at the heart of the TANGO2-related deficiency disorder story. He was the patient that inspired the discovery of TANGO2-related deficiency disorder. Many TANGO2-related deficiency disorder families referred to him as a “big brother” to their children. This had very little to do with his actual age and more to do with the fact that he was very inspiring and had a huge impact on others. He was an Eagle Scout, attending college, student manager of the basketball team, and was the 12th man for his high school football team.

Sammy will be remembered for his courage, joy, thankfulness, loyalty and commitment to everything he did in life. He never let TANGO2-related deficiency disorder define who he was or what he was capable of and his family were his biggest cheerleaders and advocated for him every step of the way. Sammy is in heaven now, but he will always be the “older brother” and protector to all TANGO2-related deficiency disorder Children. We will carry on his legacy and be heartened by the words he left us:

“God has a plan for us, he has a plan for everyone”

This wall is for every TANGO2 angel, whether we know their names or not. Seeing these photos and reading about these beautiful children will make sure they will always be remembered.

Washington, USA


10/28/2011 - 2/23/2015

I’m glad we had the times together just to laugh and sing a song, seems like we just got started and before you know it, the times we had together were gone.” -Dr. Seuss


8/15/2014 - 8/10/2017

"If my love would find a way to heaven and memories had stairs, then we would climb up and bring you back."


5/15/2007 - 3/28/2017

"Sie war sehr aufgeweckt , und sehr fröhlich , Sie liebte ihre Tiere und war so lebens froh! Navina-Indira hatte immer , egal wie es ihr ging , ein Lächeln für uns ! Sie war ein sehr fröhliches Mädchien!"

(She was very bright, and very happy, she loved her animals and was so happy! Navina-Indira always had a smile for us, no matter how she was! She was a very happy girl!)



11/6/2015 - 2/28/2020

"If love could save you, then you would live forever"


Your moments were a charity.
They gave me more than I could lose.
Yeah I know you found the promised land.
But I'm still here and I'm missing you.

"Be Here Long Song" by NEEDTOBREATHE

Jackson, MI


Kayson was 2 years old and the most loving 2 year old you could ever meet. He had a smile that could melt your heart and could just go on and on in his little toddler words. If we were out ANYWHERE he would say hi to you so loud so you couldn't miss him and always reach to give you a fist bump. We did not discover until it was too late and our sweet boy gained his wings that he had TANGO2 deficiency disorder. Through it all and all the hospital trips he stayed the sweet happy boy he always was. I know our baby boy is up there loving all the doggy's and ponies and watching over us.

In May of 2023 Kayson did not wake up from his nap and was transferred to U of M where they were able to bring him back to his normal self. He was seen in many hospitals and by many doctors for the same symptoms such as; was not able to stand or barely crawl, very lethargic, and his words for very mumbled, he was also starring into space having absent seizures. Every hospital trip was the same and nothing was done until he started seeing specialties at U of M. They did everything they could to help figure out was going on, but unfortunately Kayson passed away when we were waiting on results from his genetic blood test.


Meagan loved to dance and animals were her favorite friends. She was diagnosed after she had passed in 2020. She was 30 years old….