July 9, 2025
Hero Highlight: The Swetek-Jones Family
This month, we are highlighting our 2025 Ambassador Family, the Swetek Jones family! Veronica and…
NEWS
June 16, 2025
Hero Highlight- Dr. Christina Miyake
Dr. Christina Miyake, a pediatric cardiologist and Director of the Cardiovascular Genetics Arrhythmia Program at…
May 22, 2025
A Remarkable Discovery: The Oldest Known Case of TDD
We’re excited to share a groundbreaking new development in TANGO2 research that brings both hope…
May 1, 2025
Hero Highlight: Amanda Hull
Amanda Hull joined the community in 2018, seeking connection, support, and hope for her son…
April 1, 2025
Hero Highlight: Joyce Lombardi
We are very excited to share our March Hero Highlight, Joyce Lombardi! When Kasha and…
February 28, 2025
Raising Awareness for TANGO2 Deficiency Disorder on Rare Disease Day!
Rare Disease Day is a global initiative dedicated to raising awareness for the over 300…
January 30, 2025
Hero Highlight: Maria Jose (Majo) Arredondo—A Passionate Advocate for TANGO2 Families
This month, we celebrate the exceptional work of Maria Jose (Majo) Arredondo, one of this…
January 10, 2025
Campfires and Community: Raising Awareness for TANGO2 in Italy
A remarkable group of friends in Italy recently came together to make a meaningful impact…
January 2, 2025
T2RF Highlighted in Endpoints News
TANGO2 Research Foundation Highlighted in Endpoints News We are thrilled to share that the TANGO2…
November 26, 2024
November’s Hero Highlight
This month’s Hero Highlight is Joanne Barmasse, who has been supporting the TANGO2 Research Foundation…
October 18, 2024
Introducing Our New Outreach Committee Chair
We are thrilled to introduce Robin Mitchell as our new Outreach Committee Chair! Robin is…
September 27, 2024
Exciting Updates- GuideStar Seal, RARE Advocacy Summit & Amgen Global Advocate Grant
We Have Some Exciting Updates! The TANGO2 Research Foundation is dedicated to providing transparent and…
