IMPACT
Accelerate
research and therapy discovery
Advocate
and promote awareness
Support
and connect families
Drive
accurate and early diagnosis
We have over 80 patients enrolled in the Natural History Study allowing us to collect information to better understand TANGO2 deficiency disorder.
We have over 50 videos on our youtube channel to help educate and spread awareness of TANGO2 deficiency disorder.
Our social media channels have over 3,500 followers combined.
We currently have over 12 TANGO2 research articles and publications.
We have held two family conferences and a virtual symposium that allowed families and medical professionals to learn from one another.
Implemented regional coordinator program to support and provide resources to families around the world.
We added an early diagnosis and detection committee to raise awareness of TANGO2 deficiency disorder and investigate methods of early diagnosis of TANGO2 deficiency disorder.
We have over 80 patients enrolled in the Natural History Study allowing us to collect information to better understand tango2-related disease.
We have over 50 videos on our youtube channel to help educate and spread awareness of tango2-related disorder.
Our social media channels have over 3,500 followers combined.
We currently have over 12 TANGO2 research articles and publications.
We have held two family conferences and a virtual symposium that allowed families and medical professionals to learn from one another.
Implemented regional coordinator program to support and provide resources to families around the world.
We added an early diagnostic and detection committee to raise awareness of tango2-related disease and investigate methods of early diagnosis of tango2 disease.
COLLECTIVE
IMPACT
760,000
Research Projects
12
Institutions
18
Funded Researchers
5
Countries
