We have over 80 patients enrolled in the Natural History Study allowing us to collect information to better understand TANGO2-related deficiency disorder.

We have over 50 videos on our youtube channel to help educate and spread awareness of TANGO2-related deficiency disorder.

Our social media channels have over 3,500 followers combined.

We currently have over 12 TANGO2 research articles and publications.

We have held two family conferences and a virtual symposium that allowed families and medical professionals to learn from one another.

Implemented regional coordinator program to support and provide resources to families around the world.

We added an early diagnosis and detection committee to raise awareness of TANGO2-related deficiency disorder and investigate methods of early diagnosis of TANGO2-related deficiency disorder.