VISION
Accelerate
research and therapy discovery
Advocate
and promote awareness
Support
and connect families
Drive
accurate and early diagnosis
We have over 90 patients enrolled in the Natural History Study allowing us to collect information to better understand TANGO2 deficiency disorder.
We have over 50 videos on our youtube channel to help educate and spread awareness of TANGO2 deficiency disorder.
Our social media channels have over 3,500 followers combined.
We currently have over 25 TANGO2 research articles and publications.
We have held three family conferences and a virtual research symposium that allowed families and medical professionals to learn from one another.
Implemented regional coordinator program to support and provide resources to families around the world.
We added an early detection & diagnosis committee to raise awareness and investigate strategies for early diagnosis of TANGO2 deficiency disorder.
We have over 80 patients enrolled in the Natural History Study allowing us to collect information to better understand tango2-related disease.
We have over 50 videos on our youtube channel to help educate and spread awareness of tango2-related disorder.
Our social media channels have over 3,500 followers combined.
We currently have over 25 TANGO2 research articles and publications.
We have held three family conferences and a virtual research symposium that allowed families and medical professionals to learn from one another.
Implemented regional coordinator program to support and provide resources to families around the world.
We added an early detection & diagnostic committee to raise awareness and investigate strategies of early diagnosis of tango2 disease.
COLLECTIVE
IMPACT
860,000
Research Projects
20
Institutions
28
Funded Researchers
6
Countries
