OUR

IMPACT

Accelerate

research and therapy discovery

Advocate

and promote awareness

Support

and connect families

Drive

accurate and early diagnosis

We have over 80 patients enrolled in the Natural History Study allowing us to collect information to better understand tango2-related disease.

We have over 50 videos on our youtube channel to help educate and spread awareness of tango2-related disorder.

Our social media channels have over 3,500 followers combined.

We currently have over 12 TANGO2 research articles and publications.

We have held two family conferences and a virtual symposium that allowed families and medical professionals to learn from one another.

Implemented regional coordinator program to support and provide resources to families around the world.

We added an early diagnostic and detection committee to raise awareness of tango2-related disease and investigate methods of early diagnosis of tango2 disease.

We have over 80 patients enrolled in the Natural History Study allowing us to collect information to better understand tango2-related disease.

We have over 50 videos on our youtube channel to help educate and spread awareness of tango2-related disorder.

Our social media channels have over 3,500 followers combined.

We currently have over 12 TANGO2 research articles and publications.

We have held two family conferences and a virtual symposium that allowed families and medical professionals to learn from one another.

Implemented regional coordinator program to support and provide resources to families around the world.

We added an early diagnostic and detection committee to raise awareness of tango2-related disease and investigate methods of early diagnosis of tango2 disease.

COLLECTIVE

IMPACT

632,231

Research Projects

12

Institutions

18

Funded Researchers

5

Countries