The initial diagnosis of TANGO2-related disorder in a loved one brings a family a variety of emotions from shock, to fear to uncertainty. Being a newly discovered rare disease, families of those recently diagnosed can struggle with finding information, resources and community. When Tyson and Veronica’s daughter, Thea, was diagnosed at age 2 in 2016Read more
TANGO2 Research Foundation
300 Plaza Middlesex
Middletown, CT 06457