Blog

FOR IMMEDIATE RELEASE   February 3, 2020  (DOWNLOAD PDF VERSION HERE) MEDIA CONTACT: Kasha Morris 860-841-5222 kasha.morris@tango2research.org TANGO2 Research Foundation Awarded Grant from the Chan Zuckerberg Initiative to Fight Rare Disease Part of $13.5 Million from the Chan Zuckerberg Initiative to Drive Progress Against Rare Diseases MIDDLETOWN, Conn. (Feb. 3, 2020) — The TANGO2 Research FoundationRead more

Executive Director Position   The TANGO2 Research Foundation is seeking a dynamic and entrepreneurial-minded leader to serve as Executive Director. This is an exciting time to join our foundation to help create and cultivate an organization that makes a real difference and transforms the lives of TANGO2 patients and families. The mission of the TANGO2Read more

Christmas is the the season to give and give thanks. During the most recent season, there were several initiatives that took place  in Turin to support the work of the TANGO2 Research Foundation! The events were coordinated by, or centered around Giorgio and Rashmi Pochettino, whose child Edoardo is affected by TANGO2 disease. The eventsRead more

The Second Annual TANGO2 Benefit Banquet & Auction was held on November 10th at St. Clements Castle in Portland, CT to help Shine a Light on TANGO2. The event was hosted by Kasha and Mike Morris of East Hampton, CT whose son Ryan is affected by TANGO2 disease. The event raised over $40,000 to benefitRead more

The TANGO2 Research Foundation welcomes Researchers to submit a letter of Intent (LOI) for the first cycle of grant funding beginning in April 2020. The​ purpose of these grants is to advance the understanding of disease mechanism and treatment of TANGO2 disorder. ​Funding is available for 2-3 grants for the 2020-2021 year. Single-institution (single orRead more

Angelique and Jeffrey van der Haar of Delft, Netherlands wanted to come to the TANGO2 Family Conference in Houston this past June with their son Liam, who has TANGO2, and his sister Alyssa. At the suggestion of their friends Patricia and Nathalie, they started a fundraiser to help with the expenses of traveling as aRead more

The very first TANGO2 Family Conference is now in the history books! Over 110 people – 22 families from 6 countries, almost 20 doctors and researchers and other professionals gathered in Houston last week to present research (and other topics related to TANGO2) and learn from one another. The conference was funded in large partRead more

The very first TANGO2 Family Conference, hosted by the Baylor College of Medicine and the TANGO2 Research Foundation at The Westin Houston, Memorial City is about to get underway. Families, doctors and researchers are beginning to arrive for Tuesday night’s opening Welcome Reception. At this inaugural TANGO2 Family Conference, we are honored to welcome keynoteRead more

The TANGO2 Research Foundation would like to extend a special thanks to the following companies who have supported us through their matching gift programs. Their generous support has raised over $23K USD for the foundation thus far.** **Many companies offer similar matching gift programs and it’s a great way to leverage a gift you mayRead more

When a new disease such as TANGO2 is discovered, there is a lot to learn. Many of the physicians caring for children with TANGO2 have never seen or managed this disease. The best way to learn about a new disease is to gather as much information as possible. As parents living with children with TANGO2,Read more