Blog

Our foundation interviewed Agathe De Miniac for our blog this month. Agathe wrote a book about her family being shaken up by the arrival of three disabled children. We are pleased to share this interview in both English and French below. Click for more information or to purchase the book.   What are the names andRead more

We are pleased to share that Rare Disease Connection, a production of Aspect Health and raredisease.com, recently hosted a podcast with friends of our foundation! Sheena Byerly hosted Dr. Seema Lalani, Jayme Gilmore, and Lindsey Messerschmidt and featured their expertise and experiences with TANGO2 disease. TANGO2 disease has only been described in the last severalRead more

This month, friends and family of Ryan Morris held a successful fundraiser to honor his journey living with TANGO2 disease. Ryan’s aunts, uncles, cousins and friends rallied together and gathered donations to set up a booth at the first area Flea Market of the season.  Donations were collected from across eight different states that includedRead more

FOR IMMEDIATE RELEASE   CONTACT: Ann Geffen, Executive Director PHONE: 407-459-4427 EMAIL: ann.geffen@tango2research.org   CHAN ZUCKERBERG INITIATIVE GRANT ACCELERATES TANGO2 RESEARCH FOUNDATION’S  FUNDING OF CRITICAL RESEARCH AND HIRING OF EXECUTIVE DIRECTOR   MIDDLETOWN, Conn. (August 12, 2020) –  Within six months of receiving funding from the Chan Zuckerberg Initiative (CZI), the TANGO2 Research Foundation (T2RF)Read more

It is with pleasure that we announce the new Executive Director of the Tango2 Research Foundation. Ann Geffen joins us with an extensive and all-encompassing nonprofit background. Geffen came to the Tango2 Research Foundation from March of Dimes, where she was a National Account Manager and previously an Executive Director. There, she managed several accounts,Read more

Our Summer 2020 Newsletter is now available! Please click image below to learn more about all the exciting things going on at the TANGO2 Research Foundation as we continue our search for answers. Be sure to Subscribe to Our newsletter to receive it in your inbox.Read more

The TANGO2 Research Foundation is excited to share more details around our first cycle of grant funding that was awarded in April 2020! As expected, there has been a bit of a delay getting actual research underway due to COVID-19, but some labs have begun to open up and others are expected to in theRead more

FOR IMMEDIATE RELEASE   February 3, 2020  (DOWNLOAD PDF VERSION HERE) MEDIA CONTACT: Kasha Morris 860-841-5222 kasha.morris@tango2research.org TANGO2 Research Foundation Awarded Grant from the Chan Zuckerberg Initiative to Fight Rare Disease Part of $13.5 Million from the Chan Zuckerberg Initiative to Drive Progress Against Rare Diseases MIDDLETOWN, Conn. (Feb. 3, 2020) — The TANGO2 Research FoundationRead more

Executive Director Position (** NO LONGER ACCEPTING APPLICATIONS – THANK YOU**)   The TANGO2 Research Foundation is seeking a dynamic and entrepreneurial-minded leader to serve as Executive Director. This is an exciting time to join our foundation to help create and cultivate an organization that makes a real difference and transforms the lives of TANGO2Read more

Christmas is the the season to give and give thanks. During the most recent season, there were several initiatives that took place  in Turin to support the work of the TANGO2 Research Foundation! The events were coordinated by, or centered around Giorgio and Rashmi Pochettino, whose child Edoardo is affected by TANGO2 disease. The eventsRead more