IMPROVING THE LIVES OF THOSE

AFFECTED BY TANGO2 DEFICIENCY DISORDER

OUR

MISSION

The TANGO2 Research Foundation’s mission is to lead the way in finding a cure for TANGO2 deficiency disorder.

OUR

VISION

Accelerate

research and therapy discovery

Advocate

and promote awareness

Support

and connect families

Drive

accurate and early diagnosis

OUR

COMMUNITY

RECENT

NEWS

NewsResearchSpotlight
May 22, 2025

A Remarkable Discovery: The Oldest Known Case of TDD

We’re excited to share a groundbreaking new development in TANGO2 research that brings both hope and new insights to our community. A recently published case report has identified the oldest…
Destiny Braden
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FundraisingSpotlight
May 1, 2025

Hero Highlight: Amanda Hull

Amanda Hull joined the community in 2018, seeking connection, support, and hope for her son Sebby. Based in Suffolk, United Kingdom, Amanda is a dedicated mother of three and works…
Destiny Braden
Love0
NewsSpotlight
April 1, 2025

Hero Highlight: Joyce Lombardi

We are very excited to share our March Hero Highlight, Joyce Lombardi! When Kasha and Mike founded the TANGO2 Research Foundation in 2018 to advance research for their son, Ryan,…
Destiny Braden
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of those living with TANGO2-related deficiency disorder.

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