We are excited to announce the third TANGO2 Family Conference, scheduled from Sunday, June 23rd to Tuesday, June 25th, 2024, in Orlando, Florida! Thanks to a grant awarded to the TANGO2 Research Foundation in early 2023, we have designated funds to organize this empowering family conference.

As advocates for patient and family engagement, we strongly encourage you to actively participate in the research planning process. During the conference, experts will share the latest developments and insights on TANGO2, including updates on the ongoing natural history study and current research endeavors. Your valuable input will shape the direction of future investigations, directly influencing research initiatives for TANGO2 deficiency disorder.

To facilitate maximum family participation, we are delighted to inform you that the grant will cover a significant portion of the conference expenses. This includes two nights of accommodation at the Disney’s Coronado Springs in Orlando, Florida, as well as five meals over the course of the 2.5-day event. Additionally, child care will be provided for families who need it.

This is an exceptional opportunity to connect with your TANGO2 family and play a pivotal role in shaping the future of TANGO2 research. Don’t miss out on this invaluable experience!

For information about applying for a travel grant, please contact info@tango2research.org


Coming Soon

Coming Soon

Coming Soon

Coming Soon


The specifics on Vitamin B and TANGO2 deficiency disorder

Building a Research Roadmap

Natural History Study

More to come…


Registration fees include the following: Sunday evening meal, Monday breakfast, Monday lunch, Tuesday breakfast, Tuesday lunch, 2 day access to kids/teens camp, and 1 hotel room per family for 2 nights.

Family Members/Students/Residents/Fellows: $100 per person

Medical/Scientific Professionals:  $300 per person

Other guests: $300 per person

If you would like to apply for a travel grant, contact info@tango2research.org




What if I want to stay extra nights at the hotel either before or after the conference, or both?

The website is set up to offer additional pre/post nights based on availability.  The site will notate any unavailable nights if requested.  You can adjust dates of stay to book available nights.  If you still need a room for unavailable nights, you can book using our vacation rate website www.disneyworld.com or by calling our vacation line at 1-407-W-DISNEY to check for available resorts and rates.

What if I need more than 1 room reservation?

Guests may book additional rooms, however, the TANGO2 Research Foundation will only be covering the cost of 1 room per party for two nights (June 23rd & 24th 2024). Guests can book additional rooms on a first come first serve basis with no guarantee that you will be able to add rooms.

Can I add special requests to my room reservation such as connecting rooms?

Guests can add any requests (connecting rooms, adjoining rooms, room location, room view, room bedding, etc) in the ‘Requests’ field when booking their reservation.  If you are traveling with others, please include the primary guest’s name on the other reservation they wish to be near.  Please note requests are not guaranteed but the resort will try to fulfill as many requests as possible.

Are there any portable cribs available for young children?

Yes, you can contact the hotel to request a portable crib at no additional charge.

Can I add a cot or rollaway bed to a room reservation?

 Yes, you can request one, however availability is not guaranteed. Please note Tower rooms will have an air mattress, if available.

Does the hotel resort have wheelchair accessible rooms?

Yes, on the website, you can select Attendee Type 2. Accessible Room to check for ADA room availability and book one of those rooms.  If one is not showing up, book using Attendee and add a request for an ADA room and notate if a roll in shower or a tub is preferred.  We will check availability and block if the preferred ADA room type is available.

I am not able to book my room reservation using the link provided. What should I do?

You may call the Group Reservations line at 1-407-939-4686, Monday – Friday 8:30am – 6pm (EST) and Saturday – Sunday 8:30am – 5pm (EST).

The weblink says the dates I selected are fully booked. What should I do?

You may call the Group Reservations line to see if a phone agent can assist.  If the phone agent confirms there is no availability at the group rate, then guests can check the vacation website or phone number to check for available accommodations at other nearby resort hotels.

I want to call the resort hotel and speak to a person. What number should I call?

You may call the Group Reservations line at 1-407-939-4686.  Do not call the resort directly, your call will be redirected if you are not a current checked-in guest at the hotel resort.

I want to call the hotel from outside the USA. What number should I call?

1-407-939-4686 is the main line for Group Reservations.

Can I cancel or change my hotel reservation once it is made?

Yes, the confirmation email will include a link the guest can use to make modifications to their currently booked reservation.

Is there a deadline for hotel cancellations or changes?

Yes, the confirmation email will include a link the guest can use to make modifications to their currently booked reservation.

Is there a deadline for hotel cancellations or changes?

There is no deadline for changes, hotel cancellations must be made more than 5 days prior to the arrival date

I would like to make dining reservations at the hotel resort. How do I do that?

You can make Disney World dining reservations for your trip up to 60 days in advance. We strongly recommend making reservations as close as you can to the 60-day mark. Dining reservations can be made by either calling Disney Dining at (407) WDW-DINE, online using the official Disney website, or booking via the My Disney Experience app.


What is the address of the hotel and conference location?

Disney’s Coronado Springs Resort: 1000 W Buena Vista Dr, Lake Buena Vista, FL 32830

What is the best airport to use to get to the conference?

Orlando International Airport (Airport code: MCO). 1 Jeff Fuqua Blvd, Orlando, FL 32827. This airport is approximately 24 miles (25 minutes) to and from Disney’s Coronado Springs hotel resort.


Do I have to register people who are traveling with me but who will not be attending the conference? (ex. Grandparents, spouses, children)

No, however, everyone in your group must register if they plan to participate in any part of the conference including the Meet & Greet, meals, Kid Camp/Young Adult Supervision or conference sessions.

Do I need to register infants and children under 1 years old?

Yes, all members of your group should be registered including infants and children under one years old.

Can siblings who are not affected by TANGO2 register for the Kid Camp?

Yes, please register them and you can indicate an interest in Kid Camp.  Young children to young adults are welcome at Kid Camp.

Where can I get more information about the bio bank samples?

Informational materials will be available on the website. You can also speak directly with a medical professional at the Conference before making a decision about bio bank participation.

I am an invited guest, how do I get a promo code?

Please contact info@tango2research.org


When will the conference begin and end each day?

The conference will begin each day at about 9:00 AM EDT and end at about 5:00 PM EDT.  Details will be in the conference agenda as they are confirmed.

Will the conference be recorded? Streamed live? Translated?

Portions of the conference will be recorded and shared with the community at a later date. At this time, we are not planning to stream the conference live. Recording closed captioning will be available in different languages.

Is there a dress code?

We recommend business casual attire as appropriate for the event. Dress as you feel most comfortable and please remember to bring a jacket or sweater for the air-conditioned conference rooms.

Will there be engagement and networking sessions?

Yes, the conference will include social and networking opportunities throughout the conference.  Details will be in the conference agenda as they are confirmed.