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  • About TANGO2
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About Us

    Home About Us

    Our Mission

    Our mission is lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding of how TANGO2 mutations affect people at the most basic cellular and biochemical pathway levels.

    Meet Our Leadership Team   |    Meet Our Scientific Advisory Board

    Our History

    TANGO2 as a gene related to human disease was first discovered in 2016. Rapid advances in technology and techniques such as Whole Exome Sequencing (WES) have allowed researchers to identify and catalog rare genetic disorders at a faster pace than ever before. For those of us with older children, a diagnosis began to explain the struggles and challenges our children (and we as families) have faced after many years of searching for an answer.

    What became very clear as we as parents communicated with one another and learned more of each others unique experiences with our children and the medical community at large, is that not nearly enough was known about how it is that TANGO2 mutations affected our children at the most basic cellular, metabolic and biochemical level. The talented and caring professionals that were working so hard to help our children, lacked the benefit of this basic research and were doing the best they could with very limited research and data.

    This is where the idea for the TANGO2 Research Foundation was borne in late 2017. It is our hope that by helping to fund, coordinate and guide the efforts of researchers, scientists and doctors, we can rapidly accelerate the understanding around TANGO2 and pave the way to future therapies and positive outcomes for our loved ones.

    Registered Not-for-Profit 501(c)(3) Corporation

    The TANGO2 Research Foundation is registered as a not-for-profit corporation under the laws of the State of CT, and is exempt from United States federal income taxes under section 501(c)(3) of the Internal Revenue Code. Click here to view our 501 (c) (3) Determination Letter.

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    Our Mission

    Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding of how TANGO2 mutations affect people at the most basic cellular and biochemical pathway levels.

    Recent Posts

    • 2022 TANGO2 Family Conference Recap

      July 14, 2022 | Uncategorized

    • Our Foundation’s Story on Shining a Light on TANGO2

      June 14, 2022 | Uncategorized

    • Our Foundation is Hiring a Research Engagement Director!

      May 23, 2022 | Uncategorized

    • Things to Know for the Upcoming Family Conference

      April 28, 2022 | Uncategorized

    • Chan Zuckerberg Initiative Awards TANGO2 Research Foundation $150,000

      February 28, 2022 | Uncategorized

    Contact Us

    TANGO2 Research Foundation
    300 Plaza Middlesex
    Middletown, CT 06457

    info@tango2research.org

    Copyright 2018 - 2021 - TANGO2 Research Foundation Incorporated | All Rights Reserved | PRIVACY POLICY
    • About TANGO2
      • Symptoms
      • Early Signs of TANGO2
    • For Families
      • New Diagnosis
      • TANGO2 Study Now Underway
      • Our Stories
      • TANGO2 Conference – Houston 2019
      • Family Resources
      • Sammy’s Angels
      • Submit Your Story
    • Get Involved
      • Volunteer
      • Ways to Give
      • Fundraising Ideas
      • Apply For Grants (Researchers)
    • Research
    • About Us
      • Our Mission & History
      • Our Leadership
      • Scientific Advisory Board
      • Sponsors
      • Committees – CALL FOR VOLUNTEERS
      • Press Kit
    TANGO2 Research Foundation