TANGO2 Research Foundation
300 Plaza Middlesex
Middletown, CT 06457
Family Resources
TANGO2 Disease Support Group on Facebook
This is a great support group and a place for families affected by TANGO2 disease to share their experiences and ask questions of other families. It is a closed group started by a TANGO2 parent from California.
TANGO2 Journal Articles & Resources
- TANGO2-Related Metabolic Encephalopathy and Arrhythmias (GeneReviews – Jan 2018)
- TANGO2 -Genetic and Rare Diseases Information Center (GARD) (GARD – March 2018)
- Recurrent Muscle Weakness with Rhabdomyolysis, Metabolic Crises, and Cardiac Arrhythmia Due to Bi-allelic TANGO2 Mutations (American Journal of Human Genetics – Feb 2016)
- Bi-allelic Truncating Mutations in TANGO2 Cause Infancy-Onset Recurrent Metabolic Crises with Encephalocardiomyopathy (American Journal of Human Genetics – Feb 2016)
Recent Posts
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Notes from a Rare Disease Mom – New Blog by TANGO2 Mom
September 12, 2018 | Uncategorized
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TANGO2 In The News – Sammy’s Story
September 5, 2018 | Uncategorized
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TANGO2 Research Foundation Announces Funding of First Research Award
August 18, 2018 | Research
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Why Should I Participate in the TANGO2 Natural History Study?
August 12, 2018 | Uncategorized
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TANGO2 Research Foundation partners with NORD
June 29, 2018 | In the News