IN YOUR REGION
The Family Regional Coordinator Program was established as a way to help build positive and lasting relationships between families who share similar journeys and live in the same geographical region. The Family Regional Coordinator program is made up of family caregivers who have experienced the highs and lows of living with TANGO2-related disease.
Our Family Regional Coordinators are able to listen and support you and your family on your TANGO2-related deficiency disorder journey while sharing a wealth of helpful resources, tips, and ideas.
HELP FAMILIES navigate local resources and understand TANGO2 Research Foundation offerings.
FOSTER COMMUNICATION among families and the TANGO2-related deficiency disorder community.
PROVIDE positive and lasting relationships between families who share similar journeys and live in the same geographical region.
Regional Coordinator Program Chair – Kasha Morris
USA – West
Veronica Jones
Europe
Giorgio & Rashmi Pochettino – Italy
Angelique & Jeff Van de Haar – Netherlands
Pascale Danesi – France
United Kingdom
Amanda Hull
Arab Nations
Abdulrazag & Nawal Alghamdi
Australia
David Longman
Mexico
Ana & Sergio Huitron
Brazil
Dayane & Joao Ribeiro de Oliveira
Canada
Kara Cameron
USA – Northeast / Great Lakes / Southeast
Amy Clay
Robin Mitchell
USA – Texas / Central
Maricela Lopez
22q Community
Debbie DeLouch
To contact a regional coordinator, please email info@tango2research.org with your location and who you would like to be connected with
The Regional Coordinator program is not intended to provide diagnosis, treatment, or medical advice and should not be considered a substitute for advice from a healthcare professional.
Regional Coordinators are asked not to give medical advice or contact medical professionals on behalf of the Foundation.
To connect with our affiliate organizations focused on TANGO2 deficiency disorder in other countries, visit TANGO2UK for the UK or The Canadian TANGO2 Rare Disease Foundation for Canada.
