IN YOUR REGION
The Family Regional Coordinator Program was established as a way to help build positive and lasting relationships between families who share similar journeys and live in the same geographical region. The Family Regional Coordinator program is made up of family caregivers who have experienced the highs and lows of living with TANGO2-related disease.
Our Family Regional Coordinators are able to listen and support you and your family on your TANGO2-related deficiency disorder journey while sharing a wealth of helpful resources, tips, and ideas.
HELP FAMILIES navigate local resources and understand TANGO2 Research Foundation offerings.
FOSTER COMMUNICATION among families and the TANGO2-related deficiency disorder community.
PROVIDE positive and lasting relationships between families who share similar journeys and live in the same geographical region.
Regional Coordinator Program Chair
Kasha Morris
USA
- West – Veronica Jones
- Northeast / Great Lakes / Mid-States – Amy Clay, Robin Mitchell
- Texas – Blake Moore
- South – Kaitlyn Fryar
Canada
- Kara Cameron
Mexico
- Ana & Sergio Huitron
Brazil
- Dayane & Joao Ribeiro de Oliveira
Europe
- Italy/Greece/Hungary – Ann Rustioni
- Scandinavia – Angelique & Jeff Van de Haar
- France/Belgium – Pascale Danesi
- Spain/Portugal/Mexico – Naty Tevar
United Kingdom
- Amanda Hull
Arab Nations
- Abdulrazag Alghamdi
Australia
- Dave & Sandi Cohen
- Carmel Murphy
India
- Sathish Kumar
Japan
- Saori Nabeta
22q Community
- Debbie DeLouch
To contact a regional coordinator, please email info@tango2research.org with your location and who you would like to be connected with
The Regional Coordinator program is not intended to provide diagnosis, treatment, or medical advice and should not be considered a substitute for advice from a healthcare professional.
Regional Coordinators are asked not to give medical advice or contact medical professionals on behalf of the Foundation.
To connect with our affiliate organizations focused on TANGO2 deficiency disorder in other countries, visit TANGO2UK for the UK or The Canadian TANGO2 Rare Disease Foundation for Canada.
