This exclusive event will convene leading medical professionals and researchers to develop and publish evidence-based clinical care guidelines for managing metabolic crises in patients with TANGO2 deficiency disorders, aiming for widespread adoption. It will also address barriers to early detection and diagnosis inlcluding newborn screening in the TANGO2 community. Through expert collaboration, in-depth discussions, and rigorous literature meta-analysis, we intend to standardize best practices and enhance patient care.
Your expertise is invaluable in shaping these initiatives, and we look forward to your participation in this groundbreaking full day event.
| 7:30 AM – 9:00 AM | Networking Breakfast |
| 9:00 AM – 9:05 AM | Founder’s Welcome |
| 9:05 AM – 9:10 AM | Introduce Summit Goals & working session 1 |
| 9:10 AM – 12:30 PM | Working Session 1 |
| 12:30 – 1:30 PM | Lunch |
| 1:30 – 1:35 PM | Introduce Working Session 2 |
| 1:35 – 3:30 PM | Working Session 2 |
| 3:30 – 3:45 PM | Break |
| 3:45 – 4:45 PM | Working Session 2 |
| 4:45 – 5:00 PM | Summit wrap-up, next steps & closing |
