- A natural history is the single best avenue to study traits of TANGO2 and how these traits progress over time
- With so little currently known about TANGO2, the collective data in a natural history study provides a resource to physicians that can potentially help treat children in crisis today
- A natural history study can help identify and prioritize areas of focus for future research
- The natural history study provides the beginning of a centralized patient registry – critical for future clinical trials around treatment and management of the disease
- A natural history study provides the environment to establish both tissue and blood repositories (biorepositories). This biorepository is the basis for researchers studying the disease at the cellular or molecular level
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