Welcome to the TANGO2 Research Foundation web site. Our mission is to improve the lives of those children and young adults affected by TANGO2 related disease by helping to fund, coordinate and guide scientific research that leads to a better understanding of how TANGO2 mutations affect them. TANGO2 has only recently been identified as a gene that contributes to human disease so there is not yet a deep understanding of the specifics around the underlying pathology and biochemical pathways affected.
Our efforts are just getting underway as of early 2018 and will focus on building an impactful and sustainable organization that serves our mission. There is a sense of urgency around accelerating research and learning regarding TANGO2 disease as all of us getting this off the ground have a child, patient or other loved one affected by this life-altering condition.