EVENTS
TDD PCOR WORKSHOP #4
Friday, February 7th at 12:00 – 1:30 PM ET
Whether you are a family member or a researcher, this workshop will equip you with the tools to contribute to impactful and patient-focused research.
TANGO2 TALK
Feb 15, 2025 09:00 AM Eastern Time
Join us on Saturday, February 15, 9:00 AM ET, for the next TANGO2 Talk. The topic is the TANGO2 Natural History Study. Researchers at Baylor College of Medicine & Texas Children’s Hospital in Houston, Texas are conducting research on TANGO2 deficiency disorder. The purpose of this study is to gather medical information to develop a patient registry and to collect biological samples on children/parents for future studies. During the talk, you will meet the research team and learn about important updates and findings and the importance of your participation.
SHINE A LIGHT ON TANGO2
Saturday, March 1st to Monday June 30th, 2025
Our 5th annual Shine a Light on TANGO2 virtual fundraiser is well underway with a goal to raise $120,000 for critical research for TANGO2 disease to help further our children and young adults have the healthiest and brightest future possible.
