Amanda Hull joined the community in 2018, seeking connection, support, and hope for her son Sebby. Based in Suffolk, United Kingdom, Amanda is a dedicated mother of three and works as an educational psychologist. She plays a vital role in the Foundation as a member of the Fundraising Committee, UK Regional Coordinator, and PCORI Stakeholder Committee. Amanda is passionate about supporting the TANGO2 community and finds joy in spending time outdoors and with her family on their farm.

Amanda started the TANGO2 Trailblazers team to raise money for TANGO2 research as part of our Shine a Light fundraising campaign. Participants choose a challenge—2, 22, or 222km—and complete it their way: walking, running, swimming, biking, or rolling. The team helps fund life-changing research while raising awareness for TANGO2 Deficiency Disorder. We are so lucky to have Amanda and her family in our community!