TANGO2 Research Foundation
300 Plaza Middlesex
Middletown, CT 06457
Our Stories
Ryan
Connecticut, USAOur personal journey began back in 2002 when our son Ryan, who had been developing normally until his first birthday, began struggling with with episodic bouts of muscle weakness, paroxysmal torticoll...
Thea
California, USAMeet Thea. Thea is three years old. Starting at about eighteen months, Thea seemed different than most children. She was less active and wasn’t reaching normal milestones. She had frequent period...
Sammy
Texas, USASammy is a friendly and joyful boy who never met a stranger. His passion is football and could basically tell you about any player on any college or NFL team. He is a senior in high school and the fo...
Edoardo
Italy, EuropeEdoardo is 3 1/2 years old. Before being diagnosed with Tango2 disease, he had three severe episodes of rhabdomyolysis (at 13, 27 and 28 months old) with cognitive and motor impairment.
Since he wa...
Carlotta
Italy, EuropeCarlotta is 2 years old and is Edoardo’s younger sister. She was diagnosed with Tango2 when she was 1 year old. So far she has no evident symptoms.
Carlotta started crawling at 8 months and walk...
Bria
New Glasgow, NS CanadaThis is Bria. For the longest time we had no idea what caused Bria's 'episodes', the first of which occured at the age of 4 months. We had spent the subsequent months/years battling back from that. Br...
Eleanor
Texas, USAEleanor was born and lots of pink was brought into our home. She appeared to be healthy, happy, and typical as she approached 6 months, but being the third child what we were expecting wasn’t happe...
Liam
Delft, NetherlandsLiam is a three-year old boy diagnosed with Tango2 after a long search of studies and tests.When Liam was one-year old he had his first "attack". He had no control over his muscles and was unresponsiv...
Mátyás
Budapest, Hungary
Our little boy, Mátyás was born in Hungary on March 26, 2014. We waited a long time for him because hypothyreosis and insulin resistance had to be treated prior to becoming pregnant.
My pregnan...
Cesar
Washington, USAThis handsome young man is Cesar. He is 17 years young and he is one of the most loving, funny, caring guys you'll meet. Cesar was diagnosed with Tango2 on April 14, 2017....
Cohen
Texas, USACohen is 11. We finally found out he had Tango2 about 3 years ago after many years traveling all over the US visiting different specialists. He presented at 15 months when he began having atonic seizu...
Jackson
Washington, USAMeet our sweet boy Jackson. He was born on October 28, 2011. Jackson was born healthy. There were no birth or pregnancy complications. At 4 months of age, we noticed he was more fussy than usual and h...
Danny
Washington, USAMeet Danny Messerschmidt! He was born on October 29, 2014. He has two siblings also affected by TANGO2 related mitochondrial disease. His older brother Jackson passed away in 2015, and his younger sis...
McKenna
Washington, USAMeet McKenna Messerschmidt. She was born on 4/28/2016. She has two older brothers also affected by this disease- Jackson who passed away in 2015, and Danny who is 3 years old. There were no concerns b...
Brianna
Adelaide AustrailaMeet Miss Brianna, who is 15 years old. We have only just recently (May 2018) gotten our Tango2 diagnosis. Brianna developed normally until 6 months of age - her skull was not growing properly and she...
Olivia Grace
Pennsylvania, USAOlivia Grace is 14 months old and was diagnosed at about 4 weeks old. While in-utero, genetic testing was done to test for any potential abnormalities. Testing came back positive for DiGeorge Syndrom...
Katie
New York, USAMeet our daughter Katie. When you look at Katie you see a typical 14 year old girl, and in some ways she is. She loves music, watching YouTube videos, swimming and just hanging out with family and f...
Recent Posts
-
Notes from a Rare Disease Mom – New Blog by TANGO2 Mom
September 12, 2018 | Uncategorized
-
TANGO2 In The News – Sammy’s Story
September 5, 2018 | Uncategorized
-
TANGO2 Research Foundation Announces Funding of First Research Award
August 18, 2018 | Research
-
Why Should I Participate in the TANGO2 Natural History Study?
August 12, 2018 | Uncategorized
-
TANGO2 Research Foundation partners with NORD
June 29, 2018 | In the News