The TANGO2 Research Foundation is thrilled to welcome Alison Bell as its Research Project Coordinator. For the next year Alison will support research activities for the TANGO2 Research Foundation’s newest PCORI Eugene Washington Engagement Award. You can read about our previous PCORI Eugene Washington Engagement Award funding here.

In this role, Alison will support the “Convening to Advance Patient-Centered CER Readiness for Rare Disease Stakeholders” project, an initiative aimed at empowering the TDD and broader rare disease community to engage in patient-centered research through education, collaboration, and resource development. She will also be an integral part of helping to plan the 2026 TANGO2 Family Conference.

Alison holds a B.S. in Biology and a Master’s in Public Health, with experience in both research and non-profit grant administration. She also brings a personal connection to the rare disease community through her family’s own rare genetic disorder journey, fueling her commitment to advocacy and patient-centered research.

We’re excited to have Alison join our mission to strengthen collaboration, build capacity, and drive progress for those affected by TANGO2 Deficiency Disorder.