The TANGO2 Research Foundation (T2RF) is thrilled to announce another significant addition to our team as we continue our dedicated mission of serving TANGO2 families and advancing research into TANGO2 deficiency disorder. Thanks to the generous support from Patient-Centered Outcomes Research Institute’s (PCORI) Eugene Washington Engagement Award, we are bolstering our efforts to foster a stronger, more inclusive community comprising patients, caregivers, researchers, and various stakeholders, all united in our pursuit of patient-centered outcomes research initiatives.

Joining our charge is Samantha Irving. Sam will spend the next year at the foundation as the PCORI Research Coordinator. With a Master’s in Human Genetics and Genomic Data Analytics, she has spent the past three years immersed in the rare disease community, including serving as President of the National Organization for Rare Disorders (NORD) student chapter and working on the Patient Affairs Team at Sarepta Therapeutics. These experiences has deepened her commitment to amplifying patient voices in research. Sam’s passionate about ensuring families receive essential information to make informed decisions and looks forward to being a dedicated resource and advocate for the TANGO2 community. We are thrilled to embark on this collaborative journey with Sam, as we work together to foster a dynamic learning network and propel our research agenda forward.

To Learn more about the T2RF PCORI Engagement Award Project please click these links – T2RF receives a PCORI Eugene Washington Engagement Award and  PCORI Project Abstract.