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The TANGO2 Research Foundation (T2RF) is thrilled to announce a significant addition to our team as we continue our dedicated mission of serving TANGO2 families and advancing research into TANGO2 deficiency disorder (TDD). Thanks to the generous support from Patient-Centered Outcomes Research Institute’s (PCORI) Eugene Washington Engagement Award, we are bolstering our efforts to foster a stronger, more inclusive community comprising patients, caregivers, researchers, and various stakeholders, all united in our pursuit of patient-centered outcomes research initiatives.

Joining our charge is Dr. Jonathan P. Scaccia, Principal of the Dawn Chorus Group and CEO of PubTrawlr, whose extensive expertise in implementation science is poised to elevate our PCORI activities to new heights. With over two decades of experience, Dr. Scaccia specializes in bridging the gap between research and real-world application, particularly within community-based settings. His unwavering commitment to enhancing organizational readiness and maximizing implementation effectiveness perfectly complements our objective of empowering individuals to leverage the PCOR TDD toolbox to its fullest potential. We are thrilled to embark on this collaborative journey with Dr. Scaccia, as we work together to foster a dynamic learning network and propel our research agenda forward.

Dr. Scaccia holds a Ph.D. in clinical-community psychology from the University of South Carolina and has honed his skills through a prestigious research fellowship with the U.S. Department of Health and Human Services. His passion for creating accessible implementation science techniques serves as a cornerstone in our collective vision of cultivating impactful, patient-centered research that brings us one step closer to unraveling the mysteries of TDD and ultimately finding a cure. With Dr. Scaccia on board, we are poised to make significant strides towards achieving our goals and positively impacting the lives of those affected by TDD.

To Learn more about the T2RF PCORI Engagement Award Project please click these links – T2RF receives a PCORI Eugene Washington Engagement Award and  PCORI Project Abstract