On February 27th, Foundation co-founder, Kasha Morris, Research Director, Deena Chisholm, and TANGO2 parent, Veronica Jones Swetek attended and presented at the Rady Children’s Health Orange County & UC Irvine Rare Disease Symposium & Family Conference.
During the panel discussion, the three shared their experiences navigating the rare disease community, focusing on the realities of building a foundation and driving progress. They highlighted the journey of advocacy, overcoming challenges, and charting a path forward for families and researchers alike.
Their perspectives offered invaluable guidance and inspiration to attendees, emphasizing collaboration, resilience, and the importance of community in advancing rare disease research and care.
