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Exciting news! For the second year in a row The TANGO2 Research Foundation has been selected to receive a #RAREis Global Advocate Grant from Horizon Therapeutics’ #RAREis program.

This year the #RAREis Global Advocate Grant was awarded to 50 nonprofit organizations that work to advocate for rare disease communities. This $5,000 (USD) award will help the T2RF continue our advocacy work with TANGO2 Deficiency Disorder patients and families. Specifically, it will aid us in developing a series of 8 new educational and emotional support podcasts for our families and caregivers.

Look out for more exciting updates about our work with the #RAREis Global Advocate Grant in the future!