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Exciting news: the Chan Zuckerberg Initiative (CZI) Science in Society 2023 Annual Meeting: Advancing Patient-Driven Research in Rare Disease is coming up on September 21-23! This annual meeting seeks to unite physicians, researchers, patients, and other members of the Rare As One network to discuss the current and future focuses of patient-driven rare disease research. The CZI has provided a detailed agenda for all three days of the meeting.

Our Foundation leaders, co-founders Kasha and Mike Morris, Executive Director Ann Geffen, and Research Engagement Director Deena Chisholm have been invited to attend in person and will be there. Registration is open for those who would like to attend virtually.

Attendees can explore the TANGO2 Natural History Study (NHS) poster showcased during the virtual poster session. And don’t forget to catch Kasha Morris, co-founder of the TANGO2 Research Foundation, as a distinguished panelist in a crucial discussion centering on drug repurposing. You won’t want to miss this insightful conversation!

If you are interested in attending or learning more about this event, please click here for registration information.