On a beautiful Sunday evening at the Saint Clements Castle in picturesque Portland, Connecticut, Kasha and Mike Morris hosted an extraordinary event that would make a significant impact. The TANGO2 Benefit Banquet & Auction, held on November 5th, was a remarkable gathering with a heartfelt purpose – to raise funds for research on TANGO2 deficiency disorder and offer hope to those affected by it.
This inspiring event was hosted by Kasha and Mike Morris, dedicated parents of Ryan Morris, who is living with TANGO2 deficiency disorder. They are also the co-founders of the TANGO2 Research Foundation, a non-profit organization committed to advancing our understanding of this rare genetic disorder.
The evening featured an array of speakers who shared their insights and experiences in the fight against TANGO2. Mike and Kasha Morris passionately spoke about their journey as parents and advocates. Ann Geffen, the Executive Director of the TANGO2 Research Foundation, spoke about the organization’s mission and accomplishments. Deena Chisholm, the Research Engagement Director, highlighted the importance and success of ongoing research. Lastly, Kara Cameron, the Board Treasurer and mom from Nova Scotia Canada shared her story as the mother of Bria living with TANGO2 deficiency disorder.
The event was themed “Around the World with TANGO2,” reflecting the global reach of their mission. Special guests from different parts of the world added depth to this global perspective. Maricela Lopez, a mother to Sammy, a TANGO2 angel from Magnolia, Texas, joined the event. Dr. Seema Lalani, the researcher who discovered TANGO2 deficiency disorder in 2016, came from Houston, Texas. Lisa Wilson and Tyler, living with TANGO2 deficiency disorder, were present, alongside Katie Clay, another TANGO2 warrior, and her mother, Amy. Ana and Angel Matos, along with their 4-year-old TANGO2 warrior, Aaron, joined from Yonkers, New York. Angelique Van de Haar, the mom of TANGO2 warrior Liam, also joined the occasion from the Netherlands.
The event was not only inspiring and informative but also entertaining, featuring live music, a silent and live auction, a wine pull with over 75 wines, and a fun raffle. Attendees were delighted by the opportunity to bid on exciting items and participate in various activities, all for a great cause.
This remarkable evening was made possible thanks to the generous support of sponsors, including Reynolds’ Subaru, RecDesk, Tokio Marine, Town Fair Tire Foundation, Toyota of Colchester, SmartStart Pediatrics, Walt Jedziniak Photography, and Lakeside Bar & Grill.
The TANGO2 Benefit Banquet & Auction would not have been a success without the tireless efforts of the dedicated committee members, including Lynn MacDonalad, Joanne Barmassee, Cindy Schaller, Stacey Gibson, Sharon Owen, Chris Miller, Donna Goodspeed, Joyce Lobardi, Jodi Brazal, Beth Kelpen, and Jo Schultz. Their hard work and commitment made this event an unforgettable evening.
This event was not just a banquet and an auction; it was a testament to the power of community, hope, and determination. Together, these individuals are paving the way for a brighter future for those affected by TANGO2 deficiency disorder, one auction item at a time. With over $55,000 raised, the TANGO2 Research Foundation continues to make strides towards understanding and treating this rare condition.