October 13, 2021
FRIENDS & FAMILY RALLY FOR RYAN
This month, friends and family of Ryan Morris held a successful fundraiser to honor his…
NEWS
September 30, 2021
TANGO2 Disease Prevalence Study Findings
During the Summer, the TANGO2 Research Foundation’s leadership team met with the Broad Institute of…
June 25, 2021
FAMILY SPOTLIGHT: Meet the Longmans
The families of our TANGO2 warriors have been an immense source of support and outreach…
June 4, 2021
Meet Our New Fundraising Committee Chair
We are pleased to announce the transition of leadership for our Fundraising Committee. Our outgoing…
May 21, 2021
East Hampton Has Heart
This month, the community of East Hampton, Connecticut held two fundraising events to support Team Ryan’s…
April 20, 2021
Shining a Light on McKenna Messerschmidt
If you were on our Shine a Light on TANGO2 kickoff event back in February, you met…
March 30, 2021
Shining a light on Oliver’s Awesome Advocates!
We are happy to highlight Team Oliver’s Awesome Advocates today! Oliver was diagnosed with TANGO2…
February 28, 2021
Rare Disease Day Special Highlight: Living with a Unicorn
This Rare Disease Day, the TANGO2 Research Foundation highlights “Living with a Unicorn” – a…
January 21, 2021
TANGO2 Research Project Update & Podcast
In Spring of 2020, the TANGO2 Research Foundation granted Dr. Michael Sacher and Dr. Felix Distelmaier…
December 1, 2020
Teaming up with Solace Nutrition to help increase the quality of life for those with TANGO2 Disease
Solace Nutrition has teamed up with the TANGO2 Research Foundation to help support our mission of…
November 11, 2020
Meet Agathe De Miniac, Author of ‘Tango2’
Our foundation interviewed Agathe De Miniac for our blog this month. Agathe wrote a book…
October 7, 2020
RARE DISEASE CONNECTION TANGO2 PODCAST: Everything to know about TANGO2, from the experts
We are pleased to share that Rare Disease Connection, a production of Aspect Health and raredisease.com, recently…
August 12, 2020
CHAN ZUCKERBERG INITIATIVE GRANT ACCELERATES TANGO2 RESEARCH FOUNDATION’S FUNDING OF CRITICAL RESEARCH AND HIRING OF EXECUTIVE DIRECTOR
MIDDLETOWN, Conn. (August 12, 2020) – Within six months of receiving funding from the Chan Zuckerberg…
