
NEWS

August 12, 2018
Why Should I Participate in the TANGO2 Natural History Study?
A natural history is the single best avenue to study traits of TANGO2 and how these traits…

June 29, 2018
TANGO2 Research Foundation partners with NORD
Earlier this month, the TANGO2 Research Foundation was admitted as a member to the National Organization…

June 20, 2018
Spreading TANGO2 awareness in Lisbon
The TANGO2 Research Foundation would like to give a great big thanks to Dr. Renata…

May 9, 2018
TANGO2 – It’s a small world after all….
With fewer than 30 documented cases of TANGO2 worldwide it’s pretty amazing that two TANGO2…

April 30, 2018
A Big Sister with a Big Heart
Sammy is a 17 year old young man with TANGO2 disease. His big sister Laura…

March 28, 2018
A selfless act of kindness and generosity
Kathie and Jeff Anderson of Apollo Beach, FL have never met Ryan Morris of East…

March 3, 2018
Australian Mom talks about her son Daniel
Meet Daniel Smith and his mom Tahlia from Eaton Australia on GWN7. Daniel is 5 years…

February 28, 2018
National Rare Disease Day – The Faces of TANGO2
In recognition of of National Rare Disease Day we would like to share The Faces of…

February 22, 2018
Parents talk about TANGO2 with Ann Nyberg
Mike and Kasha Morris of East Hampton CT recently spoke with Ann Nyberg of WTNH…

February 5, 2018
TANGO2 published in GeneReviews
A special thanks to Seema R Lalani, MD, Brett Graham, MD, PhD, Lindsay Burrage, MD,…