NEWS
June 26, 2019
TANGO2 Family Conference 2019 – Huge Success
The very first TANGO2 Family Conference is now in the history books! Over 110 people – 22 families from 6…
June 17, 2019
T-Minus 1 Day – TANGO2 Family Conference – Houston 2019
The very first TANGO2 Family Conference, hosted by the Baylor College of Medicine and the…
March 6, 2019
ATTENTION TANGO2 Parents: Your participation in Baylor Study needed to help researchers learn more about the disease.
When a new disease such as TANGO2 is discovered, there is a lot to learn.…
January 3, 2019
TANGO2 Fundraiser in Turino, Italy a Great Success
The Charles Dickens holiday classic, a Christmas Carol, was the backdrop for a TANGO2 Research…
December 21, 2018
Ellie’s Story
Thank you so much to Laura and Blake Moore of Tahoka TX for sharing their…
November 12, 2018
TANGO2 Benefit Raises over $33K for Research
The First Annual TANGO2 Benefit Banquet & Auction was held on October 28th at St. Clements Castle in Portland,…
November 5, 2018
Farewell Party in Italy Raises Money for Foundation
Davide, a friend of Rashmi and Giorgio, organized his farewell party in support of TANGO2…
October 30, 2018
TANGO2 In The News – Baby Olivia’s Story
Two news outlets in British Columbia recently ran stories about Baby Olivia (McDonald), who was…
September 12, 2018
Notes from a Rare Disease Mom – New Blog by TANGO2 Mom
Veronica, Thea’s Mom, has started a blog sharing her and her family’s TANGO2 journey – click here…
September 5, 2018
TANGO2 In The News – Sammy’s Story
ABC 13 in Houston, TX recently ran a feature highlighting Sammy, The Lopez Family and…
August 12, 2018
Why Should I Participate in the TANGO2 Natural History Study?
A natural history is the single best avenue to study traits of TANGO2 and how these traits…
