
NEWS

FAMILY SPOTLIGHT: Meet the Longmans

Meet Our New Fundraising Committee Chair

East Hampton Has Heart

Shining a Light on McKenna Messerschmidt

Shining a light on Oliver’s Awesome Advocates!

Rare Disease Day Special Highlight: Living with a Unicorn

TANGO2 Research Project Update & Podcast

Teaming up with Solace Nutrition to help increase the quality of life for those with TANGO2 Disease

Meet Agathe De Miniac, Author of ‘Tango2’

RARE DISEASE CONNECTION TANGO2 PODCAST: Everything to know about TANGO2, from the experts

CHAN ZUCKERBERG INITIATIVE GRANT ACCELERATES TANGO2 RESEARCH FOUNDATION’S FUNDING OF CRITICAL RESEARCH AND HIRING OF EXECUTIVE DIRECTOR

Welcome to our new Executive Director
